Each Journey Is Unique
As with many great ideas, the eJourney initiative came from a conversation with leaders in our community. Board members Camila Coelho and Cynthia Hudson suggested a new approach to telling the stories behind the fight against epilepsy. Please join Camila, Cynthia and many, many more in this brave act of standing up against epilepsy. The eJourney is yours, and we want to share it far and wide.
1 - 10 of 75 results
0 results found
Pursuing My Dreams Despite My Diagnosis
I was a toddler when I was diagnosed with epilepsy. I didn't know what epilepsy was until my neurologist later told me it was seizures. I was also...
Popovitch Family eJourney
John and Karen’s son John Paul had his first seizure when he was a child, but they were told he would grow out of them by puberty. While they knew...
Taking a Detour for Epilepsy
For 25-year-old former NASCAR driver Matt Tifft, taking a detour from his racing career due to an epilepsy diagnosis was not in the plan. Nevertheless...
How Epilepsy Changed My Life
I was diagnosed with epilepsy in June of 2021, at the height of a COVID-19 surge. I've never had a seizure before and didn't know much about them...
Living A Full Life with Charlie Mae
Charlie Mae was born in April 2016. A loved and beautiful baby girl, she was perfectly healthy. At 3 months old, though, she had her first seizure...
Learning To Accept My Diagnosis
My name is Evan, and I am 23 years old. I am originally from Maryland, but I have had the privilege of completing my graduate studies in London and...
Shining a Light on My Journey With Epilepsy
Namaste! Many people who know me do not know about my epilepsy journey, so I am sharing it now. I do not know when my epilepsy started for sure, but I...
How I Learned to Live With Epilepsy
When I was 17 years old, I was diagnosed with Juvenile Myoclonic Epilepsy (JME). It was challenging to feel abnormal after being “healthy as a horse”...
Epilepsy Turned My Life Upside Down
When I was 3 years old, a dead tree fell on my head as I was hiking in a local park with my parents. It was 1988 and only a few days before my fourth...
Epilepsy Helped Make Me What I Am
My story began when I was seven years old. I remember being at the top of our apartment steps and feeling like I was in a dream. My mother's voice was...