The Epilepsy Learning Healthcare System (ELHS)
Imagine building a learning health system in which all people – family and community members, clinicians, researchers and health system leaders - work together. They design, implement, and share the results of collaborative research and quality improvement efforts. And this work leads to better health outcomes and increased quality, experience, and value in care. A learning health system approach can dramatically accelerate the ability to generate new knowledge and put it into practice.
In 2018, the Epilepsy Foundation was awarded a PCORNet Learning Health System Network Pilot Collaborative grant to establish an Epilepsy Learning Healthcare System.
ELHS Vision
Our vision is for all people with epilepsy to live their highest quality of life, striving for freedom from seizures and side effects, and we won’t stop until we get there.
ELHS Mission
Our mission is to design and implement a system of co-production that will improve outcomes for people with epilepsy and their families/caregivers in the following specific ways:
- Improve quality of life
- Improve seizure control
- Improve seizure freedom
Co-production means that patients, families and health care professionals work together towards similar ends. Patients and families are part of the whole process.
"We want to change healthcare and research for the better, for all people with epilepsy."
ELHS Leadership
The Epilepsy Learning Healthcare System central leadership team is composed of:
- Brandy Fureman, PhD, ELHS Network Coordinating Center Lead
- Kathleen Farrell, MB BCh BAO, ELHS Program Director
- Saniya Griffin, MBA, CSM, ELHS Program Manager
- Susan Herman, MD, ELHS Clinical Core Lead
- Jeffrey Buchhalter, MD, PhD, Quality Improvement Lead
- Lidia Moura, MD, PhD, MPH, ELHS Data Core Lead
- Nick Abend, MD, ELHS Research Infrastructure & Policy Lead
- Yashmi Shirish Sevak, MS, ELHS Data Analyst
- M. Andrea Donahue, MD, ELHS Data Program Manager
- Adriana Sartorio, MS, ELHS Community Senior Chair
- Crystal Hagans, DrPhD, ELHS Community Vice Chair
Join Us
To learn more, please contact elhs@efa.org
Learn More:
Find Your Local Epilepsy FoundationResources
Epilepsy Centers
Epilepsy centers provide you with a team of specialists to help you diagnose your epilepsy and explore treatment options.
Epilepsy Medication
Find in-depth information on anti-seizure medications so you know what to ask your doctor.
Epilepsy and Seizures 24/7 Helpline
Call our Epilepsy and Seizures 24/7 Helpline and talk with an epilepsy information specialist or submit a question online.
Tools & Forms
Download our seizure tracking app, print out seizure action plans, or explore other educational materials.
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