National Epilepsy Awareness Month
Recognizing National Epilepsy Awareness Month
November is National Epilepsy Awareness Month (NEAM), and this year we are launching a public awareness campaign to reduce stigma associated with epilepsy. The campaign, Change Our Epilepsy Story, aims to encourage people with epilepsy and their caregivers to share their journey with epilepsy, including struggles living with this condition and challenges they’ve overcome. If we share our epilepsy stories, we can educate those around us and, in turn, address the stigma surrounding epilepsy and seizures.
NEAM is the perfect time for our community to share our experiences with seizures and Change Our Epilepsy Story. So spread the word! It is also an opportunity to educate the world on how to be prepared and act safely if someone has a seizure.
How Can You Change Your Epilepsy Story?
Without you, there is no epilepsy awareness, education, advocacy, or research. Let’s continue to be resilient and build awareness for our community so that collectively, we can Change Our Epilepsy Story. Here are the ways you can make a change:
Submit an eJourney
Our eJourney blog is a place to share your experiences with epilepsy and the difficulties you've overcome. Your epilepsy story is powerful and can give people hope, empowerment, and safety. Submit an eJourney story.
Sign up for a free seizure first aid training
The Seizure Recognition and First Aid certification training provides information to increase the knowledge, skills and confidence in recognizing seizures and safely administering seizure first aid. Encourage your friends and family to register for a free seizure first aid training in honor of National Epilepsy Awareness Month. You and your family can also register our for our seizure first aid trainings in Spanish.
Share on Social Media
Social media can be a powerful tool to leverage in your epilepsy journey. Whether you’re a person with epilepsy or a caregiver, it can connect you with others going through the same things you are. Use #ChangeOurEpilepsyStory and share facts, information, or your personal experiences with your followers on social to spread awareness during this special month. You can also encourage others to share the Epilepsy Foundation’s posts and re-share our content to help raise awareness! Connect, share, and educate on social media.
Quick Facts About Epilepsy
Sharing facts about epilepsy helps raise awareness and stop stigma surrounding seizures. By educating the public, we can promote understanding and encourage support for individuals living with epilepsy. Knowledge empowers communities to provide better care, offer assistance during seizures, and create a more inclusive and compassionate environment. We've compiled some facts about epilepsy and seizures for you to share on social media or with your friends and family to help them learn more.
1 in 10 people will have a seizure and 1 in 26 will develop epilepsy during their lifetime.
There are 3.4 million people living with epilepsy in the United States; 470,000 of them are children.
Epilepsy is a neurological disorder that can affect any one of us regardless of race, age, or gender.
Seizures are a symptom of epilepsy. Not all seizures are the same. Many people with epilepsy have more than one type of seizure.
Misunderstanding and misinformation about seizures contribute to continued feelings of stigmatization and negative outcomes for people with epilepsy.1
People with epilepsy may experience "felt" stigma, which leads to shame about their condition and fear of discrimination if they talk about it.2
Felt stigma was linked to higher seizure frequency, younger age at epilepsy onset or longer duration, lack of knowledge about epilepsy, and younger age.5
Felt stigma can reduce the quality of life even when seizures are well controlled.6
References: Epilepsy & Behavior 2015 1, Epilepsia 2007 2, Epilepsia 2022 5, Epilepsy & Behavior 2021 6
We're Here for You
Epilepsy affects everyone, everywhere. Here's how we continue to help the epilepsy community:
Provide Programs and Education
From live On-Demand certification courses to 30-minute basic steps training, our seizure first aid program educates the public on approved procedures for recognizing seizures and responding to someone having a seizure.
Raise Awareness and Funds
There are many Walk to END EPILEPSY® events throughout the country focused on raising awareness and at least $1.5M combined to fund research, programs, and access to specialty care for people with epilepsy.
Our Seizure Safe Schools nationwide initiative calls for state legislation for school personnel to have appropriate training and policies to support students living with epilepsy and seizures; to date, 19 states have passed legislation.
Invest in Research and Innovation
The Shark Tank Competition is one of several initiatives that advance the development and commercialization of the most promising ideas for the diagnosis and treatment of epilepsy; since 2012, the Epilepsy Foundation has distributed $1.65M to 33 Shark Tank winners.
Epilepsy centers provide you with a team of specialists to help you diagnose your epilepsy and explore treatment options.
Find in-depth information on anti-seizure medications so you know what to ask your doctor.
Epilepsy and Seizures 24/7 Helpline
Call our Epilepsy and Seizures 24/7 Helpline and talk with an epilepsy information specialist or submit a question online.
Tools & Resources
Get information, tips, and more to help you manage your epilepsy.