Each Journey Is Unique
As with many great ideas, the eJourney initiative came from a conversation with leaders in our community. Board members Camila Coelho and Cynthia Hudson suggested a new approach to telling the stories behind the fight against epilepsy. Please join Camila, Cynthia and many, many more in this brave act of standing up against epilepsy. The eJourney is yours, and we want to share it far and wide.
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How I Live a Happy and Healthy Life With Epilepsy
My name is Sophia, and I was diagnosed with juvenile myoclonic epilepsy (JME) in June 2018, when I had a tonic-clonic seizure at 16 years old. For...
Epilepsy Changed My Life, but I Won’t Stop Fighting
When I was 18 years old and in the first half of my freshman year of college, I got a concussion that changed my life. It was a minor one, but...
You’re Not Alone
I’ve had seizures since I was 5 years old, but they were not consistent. Some of the first seizures would happen at my friend’s houses. I remember...
Leave No Stone Unturned
I had trouble maintaining friendships or being “normal” from an early age. My first tonic-clonic seizure happened when I was 9 years old, and it was...
Perspective Is Key
My life with epilepsy began in 2016. I was diagnosed with juvenile myoclonic epilepsy (JME) after having a serious tonic-clonic seizure. As the years...