Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Diagnostic Dilemmas and Testing

Someone please help me!

09/2007 | 7 Comments

OK. I have been having episodes of passing out on and off for 12 years. They have become more frequent. There have been 2 times now where I have not...
New Doctor: Will this work?

09/2007 | 6 Comments

Hi, I am going to write a bit because I need your assistance. I have been with an epileptologist for several years, in the hope that I could finally...
help meeeeeeee

09/2007 | 2 Comments

Hi All, I've been on this site for all of ten mins and I'm lost. I've been getting all these tests done in hospital which include mri, sleep deprived...
seizure help

09/2007 | 2 Comments

hey guys i need a tiny bit of help , IF some one has epilepsy is it likely that only one thing can lead to seizures , OR is it inevitable that a...
Lost medical records

09/2007 | 2 Comments

I went to a new nero and she gave me hope which is something I haven't had in many years.She talked to me about getting a vns implant which I got very...
Creutzfeldt- Jakob or Unerricht-Lumborg?

09/2007 | 0 Comments

My husband is 35 yrs old and has just been diagnosed with Progressive Myoclonic Epilepsy. Now they are looking for isn’t cause. He had a lumbar...
can alcohol cause seizures?

08/2007 | 8 Comments

I used to drink loads of alcohol in my late teens but then i stopped and started drinking much less...but still sometimes get drunk. im now 22. then i...
New diagnosis, distressed

08/2007 | 1 Comments

I have had an EEG that shows abnormal spike and wave patterns, and received a diagnosis of idiopathic generalised epilepsy. I have had 2 seizures that...
EEG interpretation question...

08/2007 | 0 Comments

Does anyone have any idea what this might mean? I haven't asked my doctor yet, but I will when i go back. In the mean time... if anyone has any...
"Driving Response?"

08/2007 | 1 Comments

Hi all. There is a phrase I would like the definition of. It is "driving response". It is found in my EEG report and is in the section relating to the...
Please Help!!

08/2007 | 1 Comments

Here I am at Mayo Clinic and I am still lost. Like so many others on here, I have no diagnosis. I found this board on accident and could not have been...
Timing before getting the all clear ????

08/2007 | 4 Comments

Hey people , i was just wondering the amount of time people who are not on epilepsy medication need to go for without having a seizure , before...
Partials with face pain/ twitching

08/2007 | 3 Comments

HI, everyone. I was diagnosed at age 24 after having 2 grand mals. Both started with a feeling that my lower right face was absent. I was on Tegretol...
VERY IMPORTANT PARTIAL COMPLEX INFO

08/2007 | 2 Comments

well i now know that neuros and epi spec dont know everything, after my big scare around 2am or what ever it was i dont know really. i had a partial...
Non judgemental help please

08/2007 | 1 Comments

Hi my name is Kristian , im trying to find out some more info on what could be causing my seizures . Im 21 years old & have had 4 seizures over the...
Symptoms Like Mine?

08/2007 | 1 Comments

Hi Everyone. I've had several negative EEGs and so it's not clear I have epilepsy. I was just wondering if anyone has episodes like mine, because I've...

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