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pcos & complex partial seizures...do i really have this?

Thu, 06/21/2007 - 22:48
I was just diagnosed with "Complex partial seizures, without motor manifestations, which may relate to cause of PCOS (annovulation.) At least thats what my neurologist wrote down for me when I asked her to give me something in writing so I could tell people what I have. She also thinks is genetic, but I was adopted so have little info. My symptoms for the past 6 months have been some slight dizziness or slight off balance feeling, some headaches, tiredness, and for a couple months some blurred and double vision upon waking in the morning, which eventually just completely went away one day. This all started back in December and lasted for two+ months. Then I was better for a couple months and then got the dizziness feeling in a different way than the first time and it has gone on for about a month and a half. During this most recent time I also developed what my GP thought was restless leg syndrome (tight, aching calf muscles, and knees keeping me awake at night.) Over the last 6 months I have had a ton of tests, Cat Scan, MRI, blood tests for lupus, lymes, defiencies and every other thing possible. I had three eye doctors check my eyes and had every eye test available. I went to an ENT & hearing specialist who both ran a battery of tests on me. Everything came back fine and the only explanation I got was maybe it was an inner ear virus which is what the vision physical therapist mentioned to me. As I said, I just spontaneously got better and then it came back differently, as more of just a dizziness without any eye issues. My GP eventually sent me to a Neuro as she was not confident she could do much else for me and was still concerned. I then had another battery of blood tests run and she sent me for an EEG, which to be honest, I almost cancelled out on as I was so tired of the endless testing and financial strain even with insurance. I did the test and was sure it went fine. But it came back abnormal during the resting portion and after the breathing portion. I never felt any different or knew anythng was wrong during the test. The neuro told me she felt I had a "Little Seizure Disorder" based on this and my symptoms. She also seemed surprised at the EEG findings. She also felt there may be a connection between the partial seizures, my pcos and restless leg thing. She put me on 500mg of Keppra 2x a day and felt that would take care of it and could possibly, over time help relieve my pcos symptoms (irregular menses, hair loss, acne, oily skin, some hirsutism, cystic ovaries- diagnosed 4+ yrs ago by a reproductive endo.) I left the office feeling- hey! maybe this is all related and felt I finally had an answer, and it all seemed to make sense when she talked with me about it....but now that Im doing some research on complex partial seizures, I dont seem to fit the symptoms at all. All I have is the dizziness/off balance feeling and that blurred, double vision from before. I recalled some earlier things from years ago...episodes of extreme dizziness that would hit me out of the blue, last maybe 10 seconds and I was fine. It was rare and always explained away by docs as nothing but a change in blood pressure or low iron. The neuro felt those were seizures. She also never mentioned epilepsy, just a seizure disorder. Im having a hard time making sense of this now. Do I have epilepsy or a seizure disorder? Does it seem possible I even have Complex Partial Seizures with my symptoms? And has anyone else had relief with pcos symptoms while on Keppra? (Ive been on the pcos soulsysters.com message board for yrs and never saw this mentioned, or seizures for that matter.) I realize this is a massive amount of info...but I am overwhelmed and confused and hoping there is someone with more knowledge about this unusual circumstance out there! My researching has left me with more questions than answers and more confused than when I started. Thanks for any and all responses!!!

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