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No diagnosis/need help
Tue, 01/23/2007 - 11:14Topic: Women With Epilepsy
I've had epileptic seizures since I was 19. I'm about to turn 29. I've had two neurologists and neither have given me a diagnosis other than "It's genetic". Well no one in my family is aware of any history of epilepsy. I had a grand mal on 1/5 after being "weaned" of Depakote". My neurologist told the ER doctor to do a pregnancy test although my tubes are tied. They didn't do a CT. I've only had one MRI done, when I was 19. My doctor has only performed EEGs and sent me for blood tests. He put me on Lamictal after the seizure. My husband and I are fed up and ready to travel if necessary. I'm in NC. Does anyone have suggestions on what I should do?
Thanks
Comments
Re: No diagnosis/need help
Submitted by Tersabwit on Thu, 2007-01-25 - 09:01
I'm in NC and all the Doctors I go to have the cure all pills, well this last one was kind anuff to give me a VNS I don't recommed it.
I have been told I have Generalized Epilepsy. Not under controll yet.. so I agree with every one . I am looking for a good Doctor maybe we can campare notes from one Doctor to another
Re: Re: No diagnosis/need help
Submitted by psimons78 on Sun, 2007-01-28 - 23:24
Definitly. Here's a dumb ? What's a VNS? By the way, I'm looking to Duke to find a good doctor. I'm tired of playing games with neurologists who seem to only want your insurance money, copay, and time. I want a doctor who is ready to improve my quality of life and not waste my time. Keep in touch.
Re: Re: No diagnosis/need help
Submitted by psimons78 on Tue, 2007-01-23 - 22:01
Thanks for the advice. I plan on looking for an epileptologist nearby. Paula