keppra & anger

comming off now. not good

To say the word “Keppra,” is to invite instant controversy. For some people it works, for some it doesn’t and for others, it’s a living nightmare. Here’s a random sampling of what real people have to say… http://epilepsytalk.com/2010/10/15/keppra-%e2%80%93-what-people-are-saying%e2%80%a6-2/ Phylis Feiner Johnson www.epilepsytalk.com

In the late 80s I was on depakote (had long hair lol) made my hair come out so I had my doc switch me to dilantin. Had my first grand mal seizure in 95. Lived in Alaska 3 different times between 2005 and 2010. My seizures went nuts, I was have 5-15 a day. I started keppra in 2006. Im now on 500mg twice a day (1) morning & night. I am short with people, impatient, my temper gets really bad and it has caused me problems with dating. I try to explain that I was never like this. I was the nicest guy, life of the party kinda guy, got along with everyone and now I feel alone and like my life is just worthless and over. When I was in Alaska in 2006 and my seizures were going off I developed Stephens Johnson Syndrome from taking the max dose of dilantin and depakote you can take to control my seizures. Now I am stuck with something that can kill me and there is no cure for it. The last time I was in Alaska I had 3 back surgeries. When I was in the hospital for the last 2 surgeries a nurse came in and asked if I was Jon, I said yes and she said she wanted to meet me because she heard I had Stephens Johnson Syndrome and so did she. Hers was worse than mine she got the burn scars and put in ICU. Of all the neurologists and tests I have had, they still havent classified my seizures and they dont know what part of the brain they come from. Because of this KEPPRA Rage I have lost the woman that I truly loved, so I just sit here heartbroken and think of what could have been. If you want to read my full story and post comments or tell your story I have created an epilepsy facebook page called Game Over for Epilepsy. Thank You