Lifestyle and Communication Toolkit

How to Prepare for Telemedicine

Telemedicine or telehealth visits provide a way to see your health care provider from your current location. Using audio and video, your visit allows you to see, hear, and talk with your provider over a secure connection. There are many ways to prepare for a virtual appointment from 1-2 days before to 1-2 hours beforehand. See the telemedicine checklist below for a full list of how to prepare for your telehealth appointment:

• ELHS Telemedicine Checklist (English) May 2020
• ELHS Telemedicine Checklist (Spanish) May 2020

Lifestyle and Safety

• Considering a Seizure Alert Device

Read this factsheet before purchasing a seizure alert device to help you make the best decision for yourself or a loved one

• Bullying Tip Sheet

Ways to manage bullying

For Women

• Checklist for Women and Girls

Women and girls with epilepsy can use this checklist to talk with their medical team about the unique health, safety, and treatment issues they face at different stages of life.

Self-management Tools

• My Health Care Team

Organize your health care team and their contact information

• My To Do List

Organize your 'to do list' for epilepsy management

• Questions For My Health Care Team

Keep track of questions for your team

• Doctors Visit Notes (English and Spanish)

Keep track of questions and updates for visits
This publication was developed with funding from the federal Maternal and Child Health Bureau, Health Services and Resources Administration under grant #H98MCO 3905-03-01 funded to the USC UCEDD Children's Hospital Los Angeles, through its initiative, Project Access: Improving Care for Children with Epilepsy. Support was also provided by two other partners in Project Access: The National Initiative for Children’s Healthcare Quality (NICHQ), under grant #U23MC038893 and the Epilepsy Foundation, under grant # U23MC03909.

SUDEP Resources (English & Spanish)

SUDEP means sudden unexpected death in epilepsy.

• SUDEP Knowledge Is Power 04-2019.pdf

SUDEP Institute's "Knowledge is Power" Fact Sheet has help finding the best care and questions to ask

• SUDEP Facts.pdf

Answers to frequently asked questions about SUDEP

• SUDEP Institute Brochure Rev 11-2018.pdf

A brochure with facts about SUDEP, tips for striving for seizure control, how to talk about SUDEP, how to become an ambassador for SUDEP awareness, and information about the SUDEP Institute.

Recommendations on reducing your child's risk for SUDEP
Our thanks to the Child Neurology Foundation and Danny Did Foundation for collaborating with the Epilepsy Foundation SUDEP Institute to create these factsheets.

• Understanding Your Child's Risk for SUDEP (Low-Risk)
• Understanding Your Child's Risk for SUDEP (Low-Risk, Spanish)
• Understanding Your Child's Risk for SUDEP (High-Risk)
• Understanding Your Child's Risk for SUDEP (High-Risk, Spanish)