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I need help saving an important part of my life
Fri, 07/26/2013 - 20:40Comments
Re: I need help saving an important part of my life
Submitted by Simplyme on Fri, 2013-07-26 - 22:57
Re: I need help saving an important part of my life
Submitted by Eternal_Howl on Sat, 2013-07-27 - 02:57
Hey,
It sounds like you might have some photosensitivity when it comes to the seizures. Not everyone has the same type, but I'm sure you know that, given what you said about familial history. When you said wearing glasses made it worse, did you mean reading/vision glasses, or sun-glasses?
I found that with my medication and probably just development, my sunglasses are almost part of my daily prescription. I'm sensitive to light, although it's improved as I have gotten older (perhaps my eye sight is packing up). Strobe lights or strobe-like lights also have a similar effect on some people who are prone to migraines. Even if it seems silly, perhaps sunglasses at night (do you remember the song?) in the vehicle might help. Since you're not driving, it might be something simple like that that helps. The idea is to lessen the effects and make you more comfortable.
With regards to the medication that you were put on, if this is your first time on medication, chances are the doctor wants to wait until the next appointment to see if your dosage has stabilized and whether you have stabilized before upping the dose, changing the meds or adding to create a cocktail. It's not uncommon for people with varying types of seizures to have varying types of medication. I was one of the fortunate ones where I didn't get that multi-pill cocktail, but it's all relative to quality of life, and I totally understand when you say you're trying to save something special (time with your husband during a hectic schedule - and possibly your sanity).
When is your next appointment and how long would you have been on the meds by then?
Hey,
It sounds like you might have some photosensitivity when it comes to the seizures. Not everyone has the same type, but I'm sure you know that, given what you said about familial history. When you said wearing glasses made it worse, did you mean reading/vision glasses, or sun-glasses?
I found that with my medication and probably just development, my sunglasses are almost part of my daily prescription. I'm sensitive to light, although it's improved as I have gotten older (perhaps my eye sight is packing up). Strobe lights or strobe-like lights also have a similar effect on some people who are prone to migraines. Even if it seems silly, perhaps sunglasses at night (do you remember the song?) in the vehicle might help. Since you're not driving, it might be something simple like that that helps. The idea is to lessen the effects and make you more comfortable.
With regards to the medication that you were put on, if this is your first time on medication, chances are the doctor wants to wait until the next appointment to see if your dosage has stabilized and whether you have stabilized before upping the dose, changing the meds or adding to create a cocktail. It's not uncommon for people with varying types of seizures to have varying types of medication. I was one of the fortunate ones where I didn't get that multi-pill cocktail, but it's all relative to quality of life, and I totally understand when you say you're trying to save something special (time with your husband during a hectic schedule - and possibly your sanity).
When is your next appointment and how long would you have been on the meds by then?
Re: I need help saving an important part of my life
Submitted by just_joe on Fri, 2013-07-26 - 21:40
With some people strobe light are not good. My question to you would be When you were diagnosed with epilepsy did your doctor start you on any medicines. If he didn't talk to him and let him know what happened and that you think it might be due to the lights. Have tou ever had any of the petit mal seizures while you wer on the computer? If not there may be a trigger with flashing lights but I am no doctor.
When you talk to your doctor give him all the information you can as to what happened times of day or night the more information he gets the better he can determine what he can do to evaluate your situation. I know it isn't good when people aren't together. My otehr half was out at markets for periods of time and I never got the rest I needed. I was too used to the warm body next to mine.
try checking out the My epilepsy diary located near the top of the page. You can write notes in it and if taking meds that to and any side effect to meds. It can also be sent to your doctor.if you have questions there is a video you can watch.
Good luck and I hope your doctor can help you and your husband
With some people strobe light are not good. My question to you would be When you were diagnosed with epilepsy did your doctor start you on any medicines. If he didn't talk to him and let him know what happened and that you think it might be due to the lights. Have tou ever had any of the petit mal seizures while you wer on the computer? If not there may be a trigger with flashing lights but I am no doctor.
When you talk to your doctor give him all the information you can as to what happened times of day or night the more information he gets the better he can determine what he can do to evaluate your situation. I know it isn't good when people aren't together. My otehr half was out at markets for periods of time and I never got the rest I needed. I was too used to the warm body next to mine.
try checking out the My epilepsy diary located near the top of the page. You can write notes in it and if taking meds that to and any side effect to meds. It can also be sent to your doctor.if you have questions there is a video you can watch.
Good luck and I hope your doctor can help you and your husband