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doing another video EEG in June
Sat, 05/28/2005 - 15:55Comments
RE: RE: doing another video EEG in June
Submitted by AvidRunner22 on Mon, 2005-05-30 - 07:50
RE: RE: RE: doing another video EEG in June
Submitted by mommy2kyra on Wed, 2005-06-01 - 17:03
Hi avidrunner,
Sounds like you are very active, that's fantastic! Good for you :)
I don't think that any patient should be treated without heart. Everyone is special and deserves to have their questions answered, rather than being shoved out the door to make as much $$ as possible. But, thankfully, not all docs are like that. You just have to keep searching for a doc that you "click" with.
I'm curious though, if you've already made up your mind about not accepting medications that will have crummy side effects, why do the VEEG? Unfortunately, ALL meds (prescription and over-the-counter) have side effects. Some side effects are real bad and the intensity wanes after a couple of weeks, to an acceptable level. Other side effects aren't so bad, but may be longer lasting. A lot of the newer meds have more tolerable side effects. You just don't know where you'll fall. You might get lucky and find the right med (and dosage) right off the bat. Or, you might have to try a few times before you find your niche.
Seizure control is important though. Seizures do have a cumulative effect on the brain, if you can prevent them from occuring I would do all I could to do so. An occasional breakthrough seizure is one thing, but if your seizures are totally uncontrolled your brain will definitely be impacted. If you've already made up your mind that you won't drive, and you're happy, that's great. But, please don't think that driving is the only thing affected by seizures. If you could have a seizure while driving a car, you could have one while out running or bicycling. Right? When I was about 10 or so, I was hit by a car while riding a bike...I didn't get on a bike again for more than 10 years (because of my fear). My point is, a bike accident can be pretty darn scary too!
Just some things to think about...btw, my hubby is from MN (Rochester-area) and we're trying to get back there :) So, let me know if you run into a good neuro if you're in that area!
Heather :)
Hi avidrunner,
Sounds like you are very active, that's fantastic! Good for you :)
I don't think that any patient should be treated without heart. Everyone is special and deserves to have their questions answered, rather than being shoved out the door to make as much $$ as possible. But, thankfully, not all docs are like that. You just have to keep searching for a doc that you "click" with.
I'm curious though, if you've already made up your mind about not accepting medications that will have crummy side effects, why do the VEEG? Unfortunately, ALL meds (prescription and over-the-counter) have side effects. Some side effects are real bad and the intensity wanes after a couple of weeks, to an acceptable level. Other side effects aren't so bad, but may be longer lasting. A lot of the newer meds have more tolerable side effects. You just don't know where you'll fall. You might get lucky and find the right med (and dosage) right off the bat. Or, you might have to try a few times before you find your niche.
Seizure control is important though. Seizures do have a cumulative effect on the brain, if you can prevent them from occuring I would do all I could to do so. An occasional breakthrough seizure is one thing, but if your seizures are totally uncontrolled your brain will definitely be impacted. If you've already made up your mind that you won't drive, and you're happy, that's great. But, please don't think that driving is the only thing affected by seizures. If you could have a seizure while driving a car, you could have one while out running or bicycling. Right? When I was about 10 or so, I was hit by a car while riding a bike...I didn't get on a bike again for more than 10 years (because of my fear). My point is, a bike accident can be pretty darn scary too!
Just some things to think about...btw, my hubby is from MN (Rochester-area) and we're trying to get back there :) So, let me know if you run into a good neuro if you're in that area!
Heather :)
RE: doing another video EEG in June
Submitted by kayakmom on Sun, 2005-05-29 - 07:33
7-10 days is not that uncommon for a VEEG. Some people go in and just do not have a seizure. My son has now had 4 VEEG, an 8 day, 7 day, 2 day and 10 day. No seizures shown. Very frustrating. I do not plan to do one again.....
Yes, meds can do the things that you say, but they can also save your life if they control seizures. They can allow you to keep driving, since a DX of seizures, or even a seizure where you loose consciousness can have your license suspended.
it is important to talk things out with your doc and find the right med for you that does NOT impair quality of life as much as possible. There are some newer meds that do not do as much negative.
It is great that you are so active. You can ask that they bring in an exersize bike while you are in for VEEG> often they offer this to try and induce seizures. I find that calcium/magnesium do help a tremendous amount for me with my cycle, maybe it could help you as well. SOunds like the timing is good for you to go in and have them see what is going on!!
Best wishes. Hoping it all goes well!
7-10 days is not that uncommon for a VEEG. Some people go in and just do not have a seizure. My son has now had 4 VEEG, an 8 day, 7 day, 2 day and 10 day. No seizures shown. Very frustrating. I do not plan to do one again.....
Yes, meds can do the things that you say, but they can also save your life if they control seizures. They can allow you to keep driving, since a DX of seizures, or even a seizure where you loose consciousness can have your license suspended.
it is important to talk things out with your doc and find the right med for you that does NOT impair quality of life as much as possible. There are some newer meds that do not do as much negative.
It is great that you are so active. You can ask that they bring in an exersize bike while you are in for VEEG> often they offer this to try and induce seizures. I find that calcium/magnesium do help a tremendous amount for me with my cycle, maybe it could help you as well. SOunds like the timing is good for you to go in and have them see what is going on!!
Best wishes. Hoping it all goes well!