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MY 6 YEAR OLD HAS HAD 3 SEIZURES IN 6YEARS WHAT DO I DO? EEG NORMAL

Tue, 10/28/2014 - 00:37

My son is 6 years old he also has Down syndrome in the past 6 years he has had 3 seizures the first one was 3 years ago and the 2nd one was 2 years ago he didn't shake on them just blank stares and stiff body EEG was normal on October 12th he had another one this time shaking 2 of the sezuires happen about 30 seconds after he trips he does not hit his head he trips playing or running and he starts whining I go to pick him up and then he had one. It's hard to explain but I'm sure he does not hit his head or does not fall because of a sezuire I see him trip. I have had cat scans done blood test and EEG all negative a neurologist wants to start him on lamotrigine generic for lamictal he wants him to be on 100mg. I don't know what to do I want to do what's best for my son but I also don't want him taking a medication that is serious. Please any advice on things I should do or consider or bring up to the neurologist or any further testing I should do thank you so much 

Comments

Hello Cynthia, The problem

Submitted by [email protected] on Wed, 2014-11-19 - 11:02
Hello Cynthia, The problem with short term EEG is this, you have an appointment on specific date and it lasts between 30 minutes and one hour. What is the chance that you are going to capture a seizure in such a narrow time frame? That is why extended EEG's are performed, one to three days typically. Your son may have electrodes attached to small recorder on his belt and allowed to go about his normal routine at home. The chance that seizure of some kind is going to be observed within three days is significantly increased. Deep 3 minutes hyperventilation at the onset of the test is one activation procedure, the second is sleep. When you choose neurologist, make sure he or she is pediatric epileptologist. In addition to medication adequate amount of sleep is very important along with controlling patient's stress level.  

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