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psychogenic non-epileptic seizures or PNES

Thu, 10/24/2019 - 21:19
I am just reading the book by Suzanne O'Sullivan, Is it All in Your Head? I just finished chapter 2 about Pauline. Pauline experienced many symptoms that lead her to the hospital where doctors could not find what was wrong. Eventually she has convulsions and goes in for EEG monitoring. O'Sullivan does a wonderful job of explaining Pauline's non-epileptic seizures, and describes the family's and doctor's challenges when trying to understand and communicate what is happening. O'Sullivan uses the term "dissociation" to describe a state where the conscious mind seperates from what is happening around you. "That detachment means that one part of you doesn't know what the other is doing. But it's not deliberate. You cannot make yourself unconscious any more than I can deliberately blush or produce tears." I'm not sure if it would be correct to call all PNES "dissociation" but maybe her writing will help some people understand what it is about. It has helped me. Pauline and her family are quite upset that O'Sullivan appears to suggest her psychogenic seizures are not real. O'Sullivan writes, "The seizures are real. The cause only helps to indicate a treatment." Also later in the chapter she writes that, "It is not necessarily the greatest suffering that receives the greatest consideration and sympathy...Psychiatric disorders manifesting as physical disease are at the very bottom" of the pile of recognition. My understanding of PNES has improved since reading this chapter. I would add that I think much of the confusion about PNES would be settled if people understood that there is a difference between seizure and epilepsy. Seizures are a symptom which can occur without having epilepsy, the neurological condition.

Comments

I’m a licensed clinical

Submitted by Patriotrehab on Thu, 2019-10-24 - 22:19
I’m a licensed clinical social worker and certified rehabilitation counselor as well as a person with epilepsy. I’ve never read the book that you’re referring to, but I do agree with what you are saying based on my experience having treated clients with PNES as well as many other mental health disorders. I’ve worked extensively with the unconscious and dissociation is a defense mechanism, but in my experience with those who have PNES...it is something different than dissociation. However, many people who claim to specialize in treating clients with PNES tend to use that terminology and the British have adopted it as their norm. Here is a website that you may find helpful in increasing your understanding. I don’t agree with everything that they say because of my experience with clients, but they do have some information that is valuable like the importance of psychotherapy. I’ve included the link to the documentary of others who have experienced PNES...you’ll notice that it’s referred to as a dissociative response in the film. https://nonepilepticseizures.com/epilepsy-psychogenic-NES-reading-materials-films.php 

Hi,Thank you for posting. We

Submitted by Anonymous on Fri, 2019-10-25 - 09:24
Hi,Thank you for posting. We are happy to hear that this book has helped you and your understanding of PNES. As you mentioned Epilepsy is a neurological disease and not everyone that has seizures has Epilepsy. A person can have a seizure from a physical cause. This could be an acute medical illness or trauma that begins before the seizure. It could also be related to a substance or event their body is responding to or withdrawing from. In these cases, seizures are called “provoked”. There are also physical or medical events that may mimic or look like seizures and are not due to changes in electrical activity in the brain, often called non-epileptic events.Gianna has offered some great resources and advice in her comment. Learn more and review our pages on PNES, here: https://www.epilepsy.com/learn/diagnosis/imitators-epilepsy/psychogenic-nonepileptic-seizures-pnes-cause-diagnosis-andFor additional resources, you may always contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help,hope, support, guidance, and access to national and local resources. You can reach the 24/7 Helpline by calling 1-800-332-1000, emailing contactus@efa.org ,or visiting us on the web at: epilepsy.com/helpline

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