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More help needed
Wed, 01/09/2019 - 01:32Topic: Epilepsy.com Help
Hi,
Wandered how you all know so much about you condition , internet fine but does not answer my questions, I see not many get answers form here either. So just trying.
Got diagnosed with grande mal seizures, had a few fits very scarey , still to this day 28 months on I have no idea why, if , . I’m on lamotrogine
My neurologist at nhs has not really said much.
Do I need to go private for more info. Find out if I’m having auras, what’s going on still, as I’m not often got a good head sometimes.
No real help and answers because no one knows the answers?I’m 40 and still confused
My knowledge comes from 50
Submitted by birdman on Wed, 2019-01-09 - 09:13
My knowledge comes from 50 years of experience in dealing with my epilepsy. During that time I've met with over a dozen doctors, tried 16 medications, been hospitalized many times, had a couple brain surgeries...The lamotrogine (brand name Lamictal) you are taking is a treatment for seizures. If the grand mal seizures are not happening anymore then there is a fair chance that lamotrogine is also helping to control any auras that you may have experienced. Leaning about epilepsy and the best treatment for yourself is time consuming. Be patient. If you are not satisfied with the answers your doctor is giving you consider seeking another doctor with whom you can relate better.Mike