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Very confused

Sat, 07/09/2016 - 18:52
Hi all, I'm hoping to get some guidance here, I'm simply at my wits end. Ok so first things first-I don't know if I've ever had a grand mal seizure. I don't think I would remember even if I did. I remember dropping and then waking up with people around me twice. No one ever whispered epilepsy so I was young and just ignored it. I had shaking spells on and off all my life that I couldnt snap out of. It just sort of happened but nothing where I lost consciousness. I would remember everything but just couldn't stop shaking. It got much worse after the death of my daughter in 2009-in 2010-my brain just snapped like somehow the reality of the horrific events of my daughters death hit me like a truck. I went to therapy with a wonderful PhD and he worked with an MD-the MD put me on everything you would typically give for depression. Severe side effects from every drug he gave me at every possible dose. Needless to say after two years of therapy I came to terms with it all. But at random I would still have these attacks. Ok fine whatever pop a Xanax when I would start feeling a panic attack and call it a day. Few years later my marriage crumbled, like most do after the death of a child. Moved back home surviving children in tow. Started therapy back up to get me through. Got through that, got myself on my feet and grounded once again. The doctor gave me Lunesta to help me sleep as I would have difficulty. Now that you know the back story this is the question. When my doctor gave me lunesta on the nights I took it, I would stiffen, clench whatever was close and shake violently then pass out. I spoke with my GP (as if I wasn't going through enough already) because my adoptive father died suddenly and I was in the middle of the semester, I felt I needed something to keep me focused on my studies. He gave me depakote because I was hesitant on taking any form of antidepressant from my previous experiences-he said this medication should help as a "mood stabilizer", ok fine. Took 250mg daily and honestly I felt amazing. No more shaking, no more dropping things-I just assumed I was a clutz, I could remember things which is amazing for me and most of all, I noticed there was a very big difference to what was happening at night and my average panic attacks (for example seeing the dentist would make my heart race, hyperventilate the standard symptoms). The doc told me, that's just added benefit. 4 months go by and I call my doctor and tell him, I've accepted my fathers death and I felt I could wean off. So I was told to titrate down. Off the medication everything got worse again. So much worse. When I told my doctor this was weird and now I could clearly see there is a difference between anxiety symptoms and this other thing. I asked to see a neurologist. After meeting with her-well-anyone whose ever been diagnosed with any mental health condition knows the stigma that comes with it. She ordered an MRI and hour EEG. MRI was fine (thank god!) but during the EEG the strobe light threw me into one of those fits I have at night. She said the spikes seen during that time were slightly spiked but negative for JME which is what she thought I had. I told her I always had problems with strobe lights, first person shooter games, ext. I was more than willing to take this as a stronger manifestation of my anxiety due to a lot of stress. More than willing to accept it. She said she doesnt treat anxiety and gave me Lamictal. I start the full 200mg dose tomorrow after a 7 week titration schedule. I had my 24hr EEG this past Thursday, the tech asked me if I had any events. I have no idea what "events" are, so I told her since I started Lamictal I would get the same auras before I would shake violently like it felt like falling down stairs but my body didn't shake, just felt that weird feeling. So naturally I asked, since I am on this medication that is to suppress any epileptic activity how will this effect the EEG. She's a tech so I wasn't expected an indepth answer. My neurologist said that epilepsy and anxiety walks hand in hand. Anyone has any insight on this? My boyfriend thinks I'm crazy because I'm 34 and just now going through this process.

Comments

depakote  Has been used for

Submitted by just_joe on Sun, 2016-07-10 - 12:06
depakote  Has been used for seizures since the early 1980's. Yes medications can be used for different things. Antidrpresents work to calm down the central nervous system which is what it does for seizures.The EEG showed spikes which are abnormal electrical impulses coming out of your brain. What startes a seizure is an electrical impulse hitting wrong in the brain. All those shaking experiances were probably seizures. Yes a peson can have one and not lose consiousness. Well for me the sord is seizure. Others use episode. The used event and other people will use anything other then what it is. All of those things are seizures. There are seizures that are started by a flash of light. Some people can't play many different games in sites because the screen changes can cause a seizure. Oh and remember the depakote helped you when it was prescribed by your doctor. Lamictal might do th esame thing. However it might stop all th seizures. It may take some time and adjustments to get the dosage set rightYou can reaserch the different types of epilepsy in th get help area and research the different types of seizures.The neurologist was going by what was said and what she thought when she came up with JME The EEG changes the viewpoint. The reason why is in it the neurologists know where the spikes or waves are coming from.The medication you are on will stop the seizures. Just like medicaation for A-fib can keep the heart beaating at the rate they want it to. It is designed to stop seizures. If later your EEG does not show abnormalities they may take to off medications slowly some come all the way off and others start to have seizuresand teh dosage is incrased a little and they keep taking the med and sill not have a seizure. My neurologist said that epilepsy and anxiety walks hand in hand I hope this helps Joe

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