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Witnessed my partners first seizure.. Help.

Mon, 03/28/2016 - 14:50
Hi guys, I am obviously new here.. and no offence, but really do not want to be here. My partner has had epilepsy since the age of 8. Had one fit when he was eight, and then three when he was 15, and was on medication from 8-15. He is now 23 and hadn't had any fits since this Saturday. That is where my story begins.. So, the past two weeks my partner has been ever so tired and different? He has had a lot of absences, which isn't that uncommon, but unbelievably tired!! We all assumed he had a bug, as he was a bit sniffly - but he didn't seem too bad. Then Saturday morning comes. He wakes up, a bit dazed and tired. Drops a money jar and breaks it that he has had for years and drops a cereal bowl. Again, Dropping things isn't that uncommon for him as he normally is quite clumsy. I came in to the kitchen just as he dropped the second item (bowl), in which contained dry cereal. As I was just about to say to him to sit down and relax and id clean it up, i looked at his face and he went bright purple. His jaw started gurning, and he stumbled backwards. My first reaction was to get him on the floor safely, as there is a lot of sharp corners in the kitchen. (Therefore, I didn't see if he spat any cereal out.. this bit is important later on..) he then started fitting and his hands went in to a tense clasped claw. The first fit of shakes/trembling lasted around 3 minutes. He then sort of stopped, and was still breathing but wasn't right. Then another 40/50 secs of shaking. He then had a massive gasp of air and was back with us. He wasn't normal by any means. He was absolutely dripping in sweat, dazed and confused, but he didn't wet himself. I obviously whilst this was going on had called the paramedics, who arrived at the end of the seizure and took him to a&e. We was there for around 5+ hours. All his bloods and neurological tests came back normal - so they sent us home. He rested a lot and couldn't really stop sleeping. We had to go back the next morning and be seen again. Again he passed the tests with no problem. They said instead of seeing the neurologist, they would again send him home with a appt to a first fit clinic in 3-4 weeks. He can't drive until then. When he goes to the clinic, he has to have EEG and a MRI. The consultant kept using the word precautionary, and said the referral to first fit clinic was mainly because of his history as a epileptic. This is where the cereal without milk comes in from earlier. When we got home from A&E the cereal that had been spilt before the fit on the floor was moist and all clumped up - almost as if it had been spat out. So we obviously mentioned this to the consultant the next day. She now believes a new theory that he was in fact choking on the dry cereal, and as he has a history of epilepsy, it trigged a seizure (especially as he was tired and unwell). Now i know we won't 100% know until the MRI and EEG, but i am just so concerned. Just looking for experienced peoples opinions/comments. Does it sound like the Epilepsy making a return? or a one off? He is a joiner so needs to drive and climb for work. if it is a one off, will they stop him driving for a year, bearing in mind its been 7-8 years since the last seizure? I know if it is the epilepsy they will suspend his licence for a year, what does he do at the end of the year if fit free? We are so lucky his boss is accommodating and will take him to/from work. So that is a worry gone! Also, What do i do if it happens again. I panicked like mad this time, as i had never seen it?

Comments

Using the word absences can

Submitted by just_joe on Mon, 2016-03-28 - 16:35
Using the word absences can make people in here think you are referring to absence seizures which are seizures and yes people can drop things in them. They are short  and if they are just setting the person in them look like they are in a daydream. If they were seizures then they drain energy so the person can be tired after them. If it was a seizure then his license may be suspended, After he goes the period of time without a seizure then the neurologist will then have forms to fill out and the suspension will be lifted. As far as knowing 100% when the tests come back that may not happen. I had 20-25 different EEG's and all cane back normal. The EEG had come back normal. But I still had seizures. The last test run in a battery of tests was another EEG in which I fell asleep in and that had abnormalities (spikes or waves) By seeing where they came from the neurologists then went back and checked that area on the MRI. That closer look was when they found scared brain tissue. SO just listen to the neurologist and also be with him and answer the neurologists questions since you saw the seizure. The more information the neurologist has will help him with determine the next step.Relax many people might not want to be here but in order to get information and answers people come here. You at least want information and want answers to questions that most people do not have answers to. If he does get a diagnosis please come back and let us know. There are many of us trying to help by answering questions. Some with the research they have done and others like me how answer using our experiences.I hope this helps Joe

Well it can show things that

Submitted by just_joe on Wed, 2016-03-30 - 15:06
Well it can show things that have happened. A blow to the head can cause a hemorrhage to the brain. That can cause scar tissue.My epilepsy is caused by just that. I had a rung come out of the ladder i was on. I hit the left side of my head and my mouth slammed into the rail on the bottom bunk if the bunk beds. Back in the 50's the doctors were more worried about the cut on my tongue and the gash on the inside of my jaw then the knot on my head. It only took 32 stitches to sew them up.So yes things can be seen if done between the original MRI and the new one.Kind of like hitting your head on the windshield during a car accident. you get the knot but thnk your OK. A concussion can do it especially if you were knocked out even for a second or two.

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