Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Family & Friends

A place for those who care for and about people with epilepsy - caring for yourselves as well as those around you.

What do we do now?

05/2004 | 3 Comments

After two years of Depakote and no seizures, my 7 yr old daughter was taken off her meds...six months and no noticable seizures later we had her...
Ketogenics in Europe

05/2004 | 0 Comments

My stepdad's son has epilepsy since his childhood. Now he is 26 and he has horrible seizures. When we first met and we went to eat, he had one of his...
Epilepsy and hypertension

05/2004 | 0 Comments

My mother, age 62, died face down in her pillow. The cause of death was "seizure disorder due to hypertension." This does not sound right to me. I had...
Epilepsy, tegretol and marijuana

05/2004 | 4 Comments

Hi all, I was wondering whether or not the effects of marijuana on the brain can intefere with the effects of the epilepsy medicine Tegretol 400mg per...
Triggers of seizures

05/2004 | 1 Comments

I observed the link between hot, humid air in the room and seizures. Situation improves when I open the window or turn on AC. Does someone have any...
Epilepsy & Tourettes

05/2004 | 5 Comments

Does anyone have any knowledge of whether or not a person can have both of these? My 8 yr old son has frontal lobe epilepsy and from time to time has...
New Parent trouble with medication

04/2004 | 4 Comments

Hello to All, Myname is Renee and my son is 8 years old and was diognosed with epilepsy in Aug. 2003 which has made our life change greatly. He is...
Seizures: behaviors or compelex partials?

04/2004 | 0 Comments

How many of you have kids with extreme behavior changes that you believe are related to actual seizures or are true behaviors (i.e. head banging and...
seizure alarms

04/2004 | 2 Comments

Hello, I'm new to this site. My daughter is 19 months old and started having temporal lobe seizures a couple of weeks ago. Her seizures have lasted 45...
Sister stops taking medication

04/2004 | 2 Comments

My 23 year old sister was diagnosed with epilepsy when she was 8 years old. It is controlled by medication. For some reason, on occasion she will stop...
Feeling like I owe the world

04/2004 | 1 Comments

My Dr. stopped allowing me to drive sence September of last year and in Michigan you have to be seizure free for 6 months on or off of medication...
JME and pregnancy

04/2004 | 14 Comments

I am a 25 year old woman with JME. Can any mothers can tell me about the types of medications they have taken while pregnant? Any discussion I have...
Help!!! EEG

04/2004 | 1 Comments

Hi groupBeen with you all for a while now, its good to know there is support out there. Right better explain myself,I have experienced using...
new born seizure advice needed

04/2004 | 2 Comments

Our second child, a girl, started having seizures in the third week after birth. Our pediatrician noticed it similar to a seizure and subsequent...
find an epilepsy doctor

04/2004 | 0 Comments

FIND AN EPILEPSY DOCTORThe Epilepsy Foundation and the American Epilepsy Society have teamed up to create an online database for website visitors to...
JME and pregnancy

04/2004 | 1 Comments

I am a 25 year old woman and was diagnosed with JME when I had a grand mal seizure at the age of 15. I have a mild form of JME that is controlled with...
she wont speak?

04/2004 | 3 Comments

hey. I know absolutly nothing abbout epilepsy, but i have a girlfriend who had quite a bad seizure today. Now she won't/can't (?) talk. I was just...
vegus nerve stimulator

03/2004 | 0 Comments

my seven year old son just had stimulator inserted. He hasnt had a siezure in six weeks and doing really good.It has changed our lives.

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.

Subscribe