Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
abnormally sensitive to medication side effects, next option surgery..
Wed, 03/24/2010 - 15:57I've had it....
since i was a teenager i've tried (1992 ish)
phenabarb,tegretol,valproate (or something?),zarontin,all for absense seizures
none of which really did the trick except zarontin but by that time I had developed grand mals and was put on dilantin... taken off zarontin slowly.
dilantin worked for eight years
and i got numb legs, hairyness, gum overgrowth as per .. tiredness whatever but it worked.
I took a risk and switched to lamictal in 2005 and for two years went through the ringer. wanted to kill myself (randomly suicidal) acne weight gain etc.. k bye bye lamictal. then I went back to dilantin in 2008 ish? and til nov 2009 i was ok. then wamoo 3 grand mal seizures in a row in the middle of the night. My doc decides to add topamax and try to decrease dilantin a bit because the side effects are getting to me once again.
now march 2010 suicidal thoughts randomly again.. more seizures than before. topamax isn't cutting it. and topamax is making me lose my vision, giving me scary suicidal thoughts and my doc just says i'm abnormally sensitive to meds next option is surgery.
has anyone gone though the process of having a scar removed from the Occipital lobe? IN Canada?? how long does it take to go through all the tests?
Heather