How to get a second opinion on medicaid with a huge spenddown?

I have been fighting my seizures as long as I can remember, diagnosed and treated at age 14, but remember them as young as 5. This was all back when I was a teenager. Eventually they were able to get them under control for a couple of years. After multiple neurologists, medications and combinations of meds, At age 28 when my seizure came back one neurologist decided to refer me to an epileptologist as they had little information other than saying I had partial onset epilepsy. When seeing the epileptologist, they started me on the testing to prepare for surgery to see if I was a candidate, however, during the wada test I had a panic attack when they put my left side of my brain to sleep and so they could not get an accurate result, and decided that trying the next test would be too risky, which would have been a brain mapping. From there I was diagnosed with mesial temporal sclerosis with simple partial and complex partial seizures with secondary generalization at times. The doctors and I decided to go on with the RNS clinical trial, back in 2008, I did the first steps for it and the surgery was done in february 2009. The epilepsy center thinks it would be a good idea for me to get a second opinion, but all I have had was medicaid, which since I no longer work at all was pulled and put on the Medically Needy plan which is medicaid with a spend down of about 3000 every 6 months I have to meet. I also found out that it is unlikely to find an epilepsy center out of the state that will accept medicaid. The only reason I was able to go forward with the RNS is my old jobs insurance covered it, but then when I lost my job, Neuropace started covering the costs. I would like to find out if anyone else has had any similar situations, and if there are any ways of going to a center that is experienced with the RNS implant since it is near impossible to get the state of KS to cover any expenses on drs more than 30 miles out of state. Any feedback would be appreciated