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feedback for me
Sat, 01/29/2005 - 21:59Comments
RE: RE: feedback for me
Submitted by TJCPS on Wed, 2004-12-22 - 15:05
You know what?
That was something that i have never heard, well in those words anyway, reading that is a whole different language than what others try to say, i dont really have a reply to that, but i appreciate the thoughts. I will post more on this subject through out the time of months to come.
Thanks againg
TJ
You know what?
That was something that i have never heard, well in those words anyway, reading that is a whole different language than what others try to say, i dont really have a reply to that, but i appreciate the thoughts. I will post more on this subject through out the time of months to come.
Thanks againg
TJ
RE: RE: feedback for me
Submitted by TJCPS on Thu, 2004-12-23 - 01:56
Me again,
Merry Christmas to all you guys and thanks, GSNESS hearing that was said perfectly thats what i need to hear at this time, thank you. Everyone have a good holiday.
tj
Me again,
Merry Christmas to all you guys and thanks, GSNESS hearing that was said perfectly thats what i need to hear at this time, thank you. Everyone have a good holiday.
tj
RE: feedback for me
Submitted by gsness on Wed, 2004-12-22 - 10:35
Hi TJ!Hang in there. Epilepsy sucks; but it's part of our lives. I know what you mean about being seizure free for a while, and then having one hit you again. I once asked my neuro about getting off of these drugs, and he said that as soon as I was seizure free for 8 months he would consider a slow reduction. Well, I haven't even come close to that yet! Every time I have one (at least once a month, more often once a week) I start the countdown all over again. I may never make it to 8 months; but it gives me another thing to tick off on my calendar, and I still keep hoping!You know, the last thing you should do is be down on yourself. This isn't something that you decided to do (you know darn well that no one wants this, and I suspect that you wouldn't really wish it on your worst enemy). But I know how you feel. Sometimes I just get sick of this whole mess, and I get mad at myself because I can't stay seizure free for very long. Usually, when this happens I try to remind myself that there are a lot of people out there who have it so much worse than us.Sometimes I think of the little children with E and their parents, who don't know what the remainder of their children's lives will hold…Or the parents who have been recently diagnosed and don't know how well they will take care of their family anymore…Or those who have a T-C seizure one or more times a day and have had to drop out of school; or never made it through school because of the learning disabilities…I guess this never gets easy; but after a while it becomes part of our life and we just go on hoping for the best and trying to take care of ourselves. Maybe that's all we can do. But hey, CHEER UP! It's another Christmas, we're still here, and we can celebrate the season with the best of them. Maybe we can even celebrate better than most people; because we can appreciate the good things in life all the more.Try not to get too “fed up,” although that will definitely happen sometimes. For me, I'm going to take it a day at a time. And if I go to bed tonight without getting carted off in an ambulance again, or find my face print in the dust on my computer monitor, or break any more ribs, I'll call it a good day and wish myself and everyone else (especially you), a MERRY YULETIDE!Blessings,gsness