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Hi everyone! I am new here. I was diagnosed with epilepsy at 16 years old I am 28 .Thankfully the medicines I am taking levetiracetam 1000mg and divalproex 500mg have control the seizures. I take both of them one at daytime and one at nighttime. I am about to be 4 years seizure free =) . The side effects of the medicine is what I feel haves had a negative effect on my body. I have other conditions besides epilepsy so they could also contribute to how my body feels. I would appreciate any kind of input thank you!

Comments

Hi,Thank you for posting.

Submitted by Anonymous on Wed, 2020-03-18 - 09:00

Hi,Thank you for posting. Congratulations on being seizure free for almost 4 years, that’s fantastic news and we wish you many years of seizure freedom ahead! We understand that living with epilepsy is more than seizures, it also means learning how to handle the way epilepsy affects your life including your physical well-being, social and emotional health. https://www.epilepsy.com/living-epilepsy/healthy-living/emotional-health . The goal of treatment with medicines should be –No Seizures and No Side Effects. However, we know that some individuals may experience too many side effects, that are very bothersome or cause other health problems. Be open and honest about how you’re feeling,and how this is affecting your health and daily life. A decision about whether to stop taking seizure medicines or making additional changes to treatment plans, should only be made after consultation with your healthcare team, who can help evaluate individual risks. https://www.epilepsy.com/learn/treating-seizures-and-epilepsy/seizure-and-epilepsy-medicines/stopping-medication .You may also want to consider using a journal or a diary like My Seizure Diary, which can help you organize your health records and is a great tool is a great tool for identifying & tracking seizures, setting reminders,managing medications, recording moods, behaviors, triggers, another therapies or personal experiences, that may affect seizures and wellness, which can be shared with your healthcare team. https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary . Additionally, you may always contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources. 1-800-332-1000, or contactus@efa.org. epilepsy.com/helpline .Or contact your local Epilepsy Foundation: https://www.epilepsy.com/affiliates , to find support groups, events and programs in your community.

Hi,Thank you for posting. Congratulations on being seizure free for almost 4 years, that’s fantastic news and we wish you many years of seizure freedom ahead! We understand that living with epilepsy is more than seizures, it also means learning how to handle the way epilepsy affects your life including your physical well-being, social and emotional health. https://www.epilepsy.com/living-epilepsy/healthy-living/emotional-health . The goal of treatment with medicines should be –No Seizures and No Side Effects. However, we know that some individuals may experience too many side effects, that are very bothersome or cause other health problems. Be open and honest about how you’re feeling,and how this is affecting your health and daily life. A decision about whether to stop taking seizure medicines or making additional changes to treatment plans, should only be made after consultation with your healthcare team, who can help evaluate individual risks. https://www.epilepsy.com/learn/treating-seizures-and-epilepsy/seizure-and-epilepsy-medicines/stopping-medication .You may also want to consider using a journal or a diary like My Seizure Diary, which can help you organize your health records and is a great tool is a great tool for identifying & tracking seizures, setting reminders,managing medications, recording moods, behaviors, triggers, another therapies or personal experiences, that may affect seizures and wellness, which can be shared with your healthcare team. https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary . Additionally, you may always contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources. 1-800-332-1000, or contactus@efa.org. epilepsy.com/helpline .Or contact your local Epilepsy Foundation: https://www.epilepsy.com/affiliates , to find support groups, events and programs in your community. 

Hi,Thank you for posting. Congratulations on being seizure free for almost 4 years, that’s fantastic news and we wish you many years of seizure freedom ahead! We understand that living with epilepsy is more than seizures, it also means learning how to handle the way epilepsy affects your life including your physical well-being, social and emotional health. https://www.epilepsy.com/living-epilepsy/healthy-living/emotional-health . The goal of treatment with medicines should be –No Seizures and No Side Effects. However, we know that some individuals may experience too many side effects, that are very bothersome or cause other health problems. Be open and honest about how you’re feeling,and how this is affecting your health and daily life. A decision about whether to stop taking seizure medicines or making additional changes to treatment plans, should only be made after consultation with your healthcare team, who can help evaluate individual risks. https://www.epilepsy.com/learn/treating-seizures-and-epilepsy/seizure-and-epilepsy-medicines/stopping-medication .You may also want to consider using a journal or a diary like My Seizure Diary, which can help you organize your health records and is a great tool is a great tool for identifying & tracking seizures, setting reminders,managing medications, recording moods, behaviors, triggers, another therapies or personal experiences, that may affect seizures and wellness, which can be shared with your healthcare team. https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary . Additionally, you may always contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources. 1-800-332-1000, or contactus@efa.org. epilepsy.com/helpline .Or contact your local Epilepsy Foundation: https://www.epilepsy.com/affiliates , to find support groups, events and programs in your community.

You did not tell what the

Submitted by Plan-To-Succeed on Wed, 2020-03-18 - 13:26

You did not tell what the effects are on you and it makes it heard to respond which my worce part was the sores in the mouth and hard to use the bathroom and found other ways that would fix them as I got older and I was so young I did not even talk about it to I got older noticed what it was from.

Thanks for sharing. The side

Submitted by daisyaraujo92@gmail.com on Thu, 2020-03-19 - 12:34

Thanks for sharing. The side effects for me that have affected me the most are headaches, fatigue, and nausea. Thanks again.