Blurred Vision / Hallucinations

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Good morning all, Im a 26 year old male from Ireland, I have had epilepsy since February 2017 and I am still quite unstable in regards of medication.. I had a seizure the last monday of August and broke 4 teeth while i was sleeping. 2 weeks later I rang my neuroligist and explained what had happened and that i was getting teeth removed as they were completely smashed. She then changed medication from 1500mg KEPPRA and 100mg VIMPAT twice a day to 750mg KEPPRA and 200mg VIMPAT twice a day which at the beginning was fine, approx 3 weeks ago I started t get extremely blurred vision randomly or I would see random movements out of the corner of my eye but when i look there is nothing there. I was wondering if anybody has gone through this or anybody has any info that can help this situation. Thanks in advance, Wayne

Comments

Hi, Thank you for posting, we

Submitted by Anonymous on Thu, 2019-11-07 - 09:38

Hi, Thank you for posting, we understand this must be very scary and upsetting to experience. Treatment and medications vary for each individual. To learn more about the medications you’re taking and about seizure medication side effects, please visit: https://www.epilepsy.com/learn/treating-seizures-and-epilepsy/seizure-and-epilepsy-medicines/side-effects The goal of treatment with medicines should be –No Seizures and No Side Effects. However, we know that some individuals may experience too many side effects, that are very bothersome or cause other health problems. It's important that you’re continuing to follow-up with your healthcare team to express your concerns and if experience any potential changes in side effects, seizure types/frequency, symptoms, behaviors and moods, to determine what individual treatment plan is best for you. You may want to consider with your doctor having a device that can help track seizures, by reviewing our seizure alert device factsheet: https://www.epilepsy.com/sites/core/files/atoms/files/DAS100_Seizure_Alert_Devices_09-2018_FINAL2.pdfAnd bykeeping a seizure diary: https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary as another self-management tool. These tools may be helpful in identifying & tracking seizures, other symptoms, managing medication, other therapies, recognizing triggers and health events that may affect seizures and wellness, which can be shared with your healthcare team. For additional information regarding seizure safety at night, please visit: https://www.epilepsy.com/learn/seizure-first-aid-and-safety/staying-safe/safety-while-sleeping Additionally, you may always contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and additional resources.1-800-332-1000, or contactus@efa.org. epilepsy.com/helplineOr contact the International Bureau for Epilepsy chapter in Ireland, by visiting: https://www.epilepsy.ie/

Hi, Thank you for posting, we understand this must be very scary and upsetting to experience. Treatment and medications vary for each individual.  To learn more about the medications you’re taking and about seizure medication side effects, please visit:  https://www.epilepsy.com/learn/treating-seizures-and-epilepsy/seizure-and-epilepsy-medicines/side-effects The goal of treatment with medicines should be –No Seizures and No Side Effects. However, we know that some individuals may experience too many side effects, that are very bothersome or cause other health problems. It's important that you’re continuing to follow-up with your healthcare team to express your concerns and if experience any potential changes in side effects, seizure types/frequency, symptoms, behaviors and moods, to determine what individual treatment plan is best for you. You may want to consider with your doctor having a device that can help track seizures, by reviewing our seizure alert device factsheet: https://www.epilepsy.com/sites/core/files/atoms/files/DAS100_Seizure_Alert_Devices_09-2018_FINAL2.pdfAnd bykeeping a seizure diary: https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary as another self-management tool. These tools may be helpful in identifying & tracking seizures, other symptoms, managing medication, other therapies, recognizing triggers and health events that may affect seizures and wellness, which can be shared with your healthcare team. For additional information regarding seizure safety at night, please visit: https://www.epilepsy.com/learn/seizure-first-aid-and-safety/staying-safe/safety-while-sleeping Additionally, you may always contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and additional resources.1-800-332-1000, or contactus@efa.org. epilepsy.com/helplineOr contact the International Bureau for Epilepsy chapter in Ireland, by visiting: https://www.epilepsy.ie/    

Hi, Thank you for posting, we understand this must be very scary and upsetting to experience. Treatment and medications vary for each individual. To learn more about the medications you’re taking and about seizure medication side effects, please visit: https://www.epilepsy.com/learn/treating-seizures-and-epilepsy/seizure-and-epilepsy-medicines/side-effects The goal of treatment with medicines should be –No Seizures and No Side Effects. However, we know that some individuals may experience too many side effects, that are very bothersome or cause other health problems. It's important that you’re continuing to follow-up with your healthcare team to express your concerns and if experience any potential changes in side effects, seizure types/frequency, symptoms, behaviors and moods, to determine what individual treatment plan is best for you. You may want to consider with your doctor having a device that can help track seizures, by reviewing our seizure alert device factsheet: https://www.epilepsy.com/sites/core/files/atoms/files/DAS100_Seizure_Alert_Devices_09-2018_FINAL2.pdfAnd bykeeping a seizure diary: https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary as another self-management tool. These tools may be helpful in identifying & tracking seizures, other symptoms, managing medication, other therapies, recognizing triggers and health events that may affect seizures and wellness, which can be shared with your healthcare team. For additional information regarding seizure safety at night, please visit: https://www.epilepsy.com/learn/seizure-first-aid-and-safety/staying-safe/safety-while-sleeping Additionally, you may always contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and additional resources.1-800-332-1000, or contactus@efa.org. epilepsy.com/helplineOr contact the International Bureau for Epilepsy chapter in Ireland, by visiting: https://www.epilepsy.ie/

Kameron, cheers for this info

Submitted by Wayneor92 on Wed, 2019-12-04 - 11:11

Kameron, cheers for this info. The visuals have slightly subsided but are occasionally still happening but now I know that this can be expected. I have had moments of rage too but nothing I will put down to medication. I will persist with the medication and hopefully they will settle. Keep well Kameron