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Epidiolex denied by insurance (I have adult TLE)
Tue, 06/18/2019 - 19:21Topic: Medication Issues
I have partial aware focal seizures, and I have not responded to all of the traditional AED drugs. I was diagnosed with Temporal Lobe Epilepsy in 2017 when I was 27
Anyways, my doctor prescribed Epidiolex. My insurance denied it and subsequently denied all of my appeals because I don't have LGS or DV.
Is anyone else out there in my situation?
I just want to try this medicine. But it costs $7500 for a 30 day supply if I were to pay out of pocket.
The "over the counter" CBD seems to help... But scares me because it is unregulated and the dosing is drastically different for recreational use recommendations versus the dosing guidelines of Epidiolex.
Comments
I know a couple people people
Submitted by jakedduck on Sat, 2020-01-04 - 14:29
I know a couple people people on it who get major assistance from the manufacturer. Sadly it hasn’t been very effective in either.
Hi ackmke, Thanks so much for
Submitted by Anonymous on Wed, 2019-06-19 - 10:04
Hi ackmke, Thanks so much for posting, we understand this can be a very frustrating and expensive process. For more information regarding our patient assistance programs please visit: https://www.epilepsy.com/living-epilepsy/247-helpline/patient-assistance For information regarding insurance appeals please visit: www.patientadvocate.org You may also contact our Epilepsy and Seizures 24/7 Helpline: 1-800-332-1000, contactus@efa.org , epilepsy.com/helpline , where a trained information specialist can connect you to resources, provide referrals and additional support. Additionally your local Epilepsy Foundation: epilepsy.com/localsupport, can help you find resources, support groups, events, and programs in your community. For information regarding medical marijuana please follow-up with your healthcare team, to determine what treatment is best for you. You may also visit: https://www.epilepsy.com/learn/treating-seizures-and-epilepsy/other-treatment-approaches/medical-marijuana-and-epilepsy and for additional information about Epidiolex please visit: https://www.epilepsy.com/medications/cannabidiol-oral-solution