Siezures and Medication

The best place to start is by logging (on a spreadsheet or journal) all of the medications, seizures, side effects, and other material you think is associated with your daughter's struggles. When a person with, for example, hypertension goes in doctor visits the professionals are able to measure how well a treatment is working just by checking the blood pressure.  With epilepsy doctors rely upon patients and / or caretakers for information on the effectiveness of a treatment.  They do not measure the number of seizures that happen between appointments and, since they are unlikely to see a seizure at the visit, they do not know how the seizures change.  They are likely to notice behavioral problems at the visit, but they are not likely to be able to compare these problems over the long term, especially if there are changes in doctors.  I use Microsoft's spreadsheet to keep track of my epilepsy and other medical history.  There are seizure logs and "Seizure Tracker" online forms.  I have never seen these forms and do not know if they allow for documentation of medications, side effects, and other data that influence epilepsy health.  How many medications has your daughter tried?  If she doesn't get comfortable control after trying just 3 or 4 you might want to ask for a referral to an epilepsy specialist who can offer alternative treatments.

Thank you for your advice. As far as her seizures go they can just come on out of nowhere. This is why the doctor changed her medicine because she started having them again. Her Dr. started her out on Lamictal that didn't help then from there went to ethosuximide. From Ethosuximide to the Valproic Acid which helped for over a year then bam just started having them again so the doc changed her to Onfi. Her behavior problems started about the time she started taking the Valproic Acid.

And I imagine that since she has absence seizures the doctor is waiting to see if she "outgrows" the seizures as many children do experience with absence seizures.  My niece had them and was on medication but now (16 yrs old?) I think she is off her meds and has no seizures.  But she never had behavior problems with her medications or seizures.  How many doctors has she seen and been diagnosed by?  Ask the doctor if she might be experiencing temporal lobe, or "focal" seizures along with or instead of absence seizures.  I have had and continue to have anger problems and it gets worse with more medications.  This is believed to be the result of temporal lobe seizures.  I wish you well and I wish I could help more.