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The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Tomamax side effects

Sun, 07/07/2019 - 00:24
Hi I'm wondering if anyone else has had issues with Topamax as I have. My heart rate has gone as high as 250 beats per minute and I'm just sitting and relaxing. It is really scary. I can use all the advice you can give. Thanks.

Comments

Hi Cynergie, Thanks so much

Submitted by Anonymous on Mon, 2019-07-08 - 09:11
Hi Cynergie, Thanks so much for posting and we understand this must be very scary to experience. It’s very important that you follow- up with your healthcare team to discuss any changes in side effects, seizure types, frequency, behaviors, and symptoms to help determine what individual treatment is best for you. To help prepare for your visit with your doctor visit:  https://www.epilepsy.com/sites/core/files/atoms/files/pg2L_HealthCareVisits_09-2018.pdf https://www.epilepsy.com/sites/core/files/atoms/files/717QHT_QuestionsHealthcareTeam_05-2019.pdf                  For more information regarding Topamax & side effects visit: https://www.epilepsy.com/learn/treating-seizures-and-epilepsy/seizure-and-epilepsy-medicines/side-effects https://www.epilepsy.com/medications/topiramate It  may be helpful having a device: https://www.dannydid.org/ ,  that can help track  seizures:  https://www.epilepsy.com/learn/managing-your-epilepsy/tracking-my-seizures/importance-tracking-seizures And by keeping a seizure diary:  https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary . These tools may be helpful in identifying & tracking seizures, other symptoms, managing medication& other therapies, recognizing triggers and health events that may affect seizures and wellness, which you can share with your healthcare team. https://www.epilepsy.com/sites/core/files/atoms/files/DAS100_Seizure_Alert_Devices_09-2018_FINAL2.pdf     Sometimes it's helpful to connect with other people who live with epilepsy,  to ask questions, share experiences, find & give support to each other, by contacting your local Epilepsy Foundation at:  epilepsy.com/localsupport,  to find support groups,events, and programs in your community. Additionally our Epilepsy and Seizures 24/7 Helpline: 1-800-332-1000, contactus@efa.org, can assist in connecting you to resources, provide referrals and additional support. epilepsy.com/helpline  

STOP TAKING THIS DRUG!!!

Submitted by ali826 on Wed, 2019-07-17 - 06:38
STOP TAKING THIS DRUG!!! Topamax has stolen three years from my life, and has affected me with aphasia, and long+short term memory loss. I stopped taking it about a week ago and I’m still having withdrawal effects...The withdrawal gave me seizures, and I’ve never even had one before then (I was taking topamax for migraines). I’ve been living in what feels like a dream, and my consciousness is sitting back, watching my life and it constantly feels like I’m trying to claw my way back to reality. Thank God these side effects go away... Dehydration, paranoia, anxiety, loss of touch with reality, heart palpitations, extreme mood changes etc...  I’ve gained back almost all of my cognitive skills (thankfully), but I only wish I stopped taking topamax so much sooner. Do yourself a favor and just take something else... and make sure to do your research before you put anything into your body. Best of luck to you and your experience.

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