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Topamax side effects

Tue, 01/25/2005 - 15:52
My husband started taking topamax (400mg/day) Dec 1. Since taking the new med he has what he describes as a "shrinking feeling", where everything around him appears to shrink. Typically lasts about 5-10 minutes. He had one of these experiences while he was on an EEG and no irregular activity was detected, so they don't think it's a seizure. Anyone have experiences like this related to Topamax?

Comments

RE: Topamax side effects

Submitted by pongosmommy on Sun, 2005-01-16 - 14:23
Hi,I also take Topamax. I haven't experienced that feeling but I am on a very low dose (100 mg). My prev Neuro swore my seizures were just migraines. Last night I had 3 seizures. Had to be rushed to Emergency Room. Doctor there Upped my Meds. We'll see what kind of side effects I get. I already have memory loss and lose words and have lost weight.Dayna

RE: Topamax side effects

Submitted by Painthorse on Mon, 2005-01-17 - 09:32
I am on Topamax 200mg a day.  I also get spacial disturbances, like the room is shrinking.  My neuro said she didn't think it was drug related, but to keep a journal on when it happens as well as when the topamax was taken.

RE: RE: Topamax side effects

Submitted by theresab72 on Mon, 2005-01-17 - 12:31

I was on Topamax 100 mg twice a day and began having these feelings like my body was becoming distorted.  It wasn't the room that was changing, but my body was.  It was always when my eyes were closed and I was beginning to fall asleep, but even if I opened my eyes, I would still feel that feeling.

Examples...I would feel that the side of my face was protruding outward in gross proportions as I laid that side of my face on the pillow.  Or I would feel that my tongue was swelling up inside my mouth so that I was beginning to suffocate.  Or my head was swelling up like a balloon and floating up over my body.  Very weird feelings...

I told this to my neurologist and he suggested that I decrease the amount of Topamax I was on.  He reduced me to 75 mg twice a day and later to 50 mg twice a day.  I have only gotten the "feelings" about two or three times since and this has been since Dec. 1st, but he believes that it occurred because of the Topamax level being too high.

I am supposed to be switched to a different med soon and off of Topamax and am hoping that these weird feelings will go away!

Good luck to your husband...Theresa

I was on Topamax 100 mg twice a day and began having these feelings like my body was becoming distorted.  It wasn't the room that was changing, but my body was.  It was always when my eyes were closed and I was beginning to fall asleep, but even if I opened my eyes, I would still feel that feeling.

Examples...I would feel that the side of my face was protruding outward in gross proportions as I laid that side of my face on the pillow.  Or I would feel that my tongue was swelling up inside my mouth so that I was beginning to suffocate.  Or my head was swelling up like a balloon and floating up over my body.  Very weird feelings...

I told this to my neurologist and he suggested that I decrease the amount of Topamax I was on.  He reduced me to 75 mg twice a day and later to 50 mg twice a day.  I have only gotten the "feelings" about two or three times since and this has been since Dec. 1st, but he believes that it occurred because of the Topamax level being too high.

I am supposed to be switched to a different med soon and off of Topamax and am hoping that these weird feelings will go away!

Good luck to your husband...Theresa

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