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16 Month old started having strange spasms/seizures
Sun, 11/17/2019 - 08:24Topic: New to Epilepsy.com
Hey people ,
Looking for some help/guidance on what this could be. My 16 month old son has been completely healthy his whole life but in the past few weeks has developed some sort of seizures and we are trying to figure out what it could be. He pushes his head forward, his arms generally go stiff and he hunches over. Or if he is on the groud he kinda pushes himself up with his arms and goes all stiff. He doesn't make any noises, his eyes look straigh ahead but he does blink. They always last less than 30 seconds and he has been having around 10 a day, mostly 1 an hour. As soon as they stop he just goes straight back to eating or making noises or playing with whatever he was beforehand and he never seems upset by it. He has a very bad cold at the moment but it's not like a febrile seizure. Also it seems late for it to have started for infant spasms. He also only has 10-15 episodes a day which seems a lot less than what infant spasms generally have. Any ideas?
Hi,Thank you so much for
Submitted by Anonymous on Mon, 2019-11-18 - 09:39
Hi,Thank you so much for posting, we understand this can be very scary and upsetting for you all to experience. Seizures can take on many different forms and affect different people in different ways. It's important that you all are following up with your son’s healthcare team to discuss your concerns you and these episodes you describe further, and if he experiences any changes in seizure types/frequency, symptoms, side effects symptoms, behaviors and moods, to determine what individual treatment plan is best him. For assistance finding a specialist near you, please visit: https://www.epilepsy.com/living-epilepsy/find-epilepsy-specialist Our new to Epilepsy & Seizure tool kit is a great resource and starting point for learning about epilepsy, what resources are available, how to make the most of doctors' visits, and how to take control of seizures, seizure first aid & safety, & find self-management tools. Learn more here: https://www.epilepsy.com/living-epilepsy/toolbox/new-seizures-and-epilepsyMy Seizure Diary: https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diaryis a great tool for not only tracking seizures, but recording his medical history, setting reminders managing medications, side effects, moods, triggers, which can be shared with his healthcare team. For more information regarding infantile spasms, please visit: https://www.epilepsy.com/learn/types-epilepsy-syndromes/infantile-spasms-wests-syndrome-and-tuberous-sclerosis-complexIt’s common for those who are in caretaker role to feel overwhelmed. It’s important to remember that you are not alone, and it is just as important to make sure you’re taking care of yourself as well.https://www.epilepsy.com/living-epilepsy/parents-and-caregivers It can be helpful to connect with other parents who may have similar experiences, to ask questions, find &give support to each other, by visiting: https://www.epilepsy.com/living-epilepsy/parents-and-caregivers/parents-helping-parents Additionally, you may always contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources. 1-800-332-1000, or contactus@efa.org. epilepsy.com/helpline