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2nd Seizure - lablled as having epilepsy, Advice as this is all new & worrying for us!
Fri, 04/20/2018 - 05:53Topic: New to Epilepsy.com
My daughter (aged 19) woke up this week, turned her head and felt her head lock and started shaking, she then does not remember the rest, her boyfriend said she was out for around 1 min, shaking, frothing at mouth, rolled eyes, urinated & bit her tongue.
She is at Uni so I am sure sleep deprevation plays a huge part, however the night before she had no alcholol and a chilled night.
This happened 5 years ago, where she suddenly woke up as was late for something, and similier happened, we really put this down to the shock of knowing she was going to be late for a ferry.
Becuase of this they are saying very probably epiletic, they did do bloods , and referred her to a nerologist in which we are seeing next week, however saying she cannot drive for a year and must let DVLA know.
I want to go prepared next week, however I really do not want her going on medication for life as only had 2 episodes, or am I being naive, as this is all new to us. I beleive they will do further tests, but really feel for her as they have said no alcohol, no strobe lighting, and as at Uni this is totally devasting for her.
Any advice would be very much appreciated
Comments
Thank you so much for your
Submitted by San001 on Mon, 2018-04-23 - 04:47
Thank you so much for your reply, I am totally new to this which is why I came on this forum which is great.
Thank you so much for your
Submitted by San001 on Mon, 2018-04-23 - 04:52
Thank you so much for your reply, I am totally new to this which is why I came on this forum which is great.
Not everyone takes meds for
Submitted by Amy Jo on Mon, 2018-04-23 - 00:33
Not everyone takes meds for life, certain types of epilepsy make that likely but there are many kinds of epilepsy. Many people take medication for a few years and wean them (under doc's directions) to see if that does the trick which happens for some people. Not taking meds has a downside, repeated seizures cause damage, some seizures are life threatening so it's not a minor thing to skip treatment. Lifestyle modifications help a lot, but once one has started having seizures, one can't depend on that alone. Some people, often people who can't get control with just meds, get better control of seizures with a very low carb diet - modified atkins or ketogenic diet are the most common but those are pretty major steps one needs to take in consultation with a neurologist and it isn't suited for everyone.