Boyfriend had his first seizure 3 weeks ago..

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My boyfriend Arthur had his first seizure at work three weeks ago. On Sunday morning around 6:30 am I walked out of the shower to 3 missed calls from my boyfriend. At first glanced I thought he was just calling to see if I was awake to pick him up from his graveyard job as surveillance for a casino so when i called back he was slurring and I asked if he was okay and he tells me he is in the ER and doesn't remember how he got there. I got dressed and rushed to see him. At first I thought something happened at work and he was injured or perhaps he got into a fight. See, Arthur lifets weights everyday and tries to stay healthy. Anyways, I went to get him from the ER and all they told him was to stay away from liquor which he doesn't drink. However, he's always taken pre work out, protein, energy drinks galore. I took him home scared, head banged, body all bruised up and a swollen tongue. He got three days off and things seemed better. He was working out again and tongue had healed. A week later again, like clock work, we were laying in bed, I felt his hand scratching my thigh and when I turn to tell him that he was hurting me, I knew he was about to have another one. I jumped up and moved him to his side, and held him gently crying because I couldn't help him. I screamed for him roommate but he couldn't hear me. He came over when it was over we tried to get him to stay in bed but looked at both of us and couldn't recognize us. He had bitten his tongue once again and he had scratched his stomach pretty bad. I stayed with him while his roommate went to get him electrolytes. I clipped his nailes, showered and dressed him md took him back to the ER. This time they gave him medication, and helped us find a doctor to refer us to a neurologist. They also told me he couldn't drive. See he doesn't have a primary doctor. Once again he returned to working out but stopped taking energy drinks, all pre workout with the exception of vegan protein. Today is been a week since his his second seizure. The medication seems to be working but he often gets depressed, angry, sad. Today I caught him crying because he asked his roommate to spot him during his workout and he came back telling me how of an inconvenience he has become to everyone. I am crying as I write this lines because I wish I could do something to make it all better but I feel helpless. He has asked to transfer to day but he was told he couldn't. I don't know what to do. I want him to be okay unfortunately I can't be with him at all times because I have to work and well, we don't live together. I am scared. I've contemplated moving to another country where medication and housing is actually affordable. I'm scared for him, for his future, our future. Nancy

Comments

Hi nansi.cisne, Thanks so

Submitted by Anonymous on Mon, 2019-07-29 - 09:14

Hi nansi.cisne, Thanks so much for sharing your experience, it sounds like you all have been through a lot. It’s important that you continue to express your concerns to your boyfriend's healthcare team and discuss any changes in seizure types, frequency, side effects, behaviors and symptoms. https://www.epilepsy.com/sites/core/files/atoms/files/pg2L_HealthCareVisits_09-2018.pdf Our new to Epilepsy & Seizure tool kit is a great resource and starting point for learning about what epilepsy is, what resources are available, how to make the most of doctors' visits, and how to take control of seizures.Learn more here: https://www.epilepsy.com/living-epilepsy/toolbox/new-seizures-and-epilepsy For assistance and information regarding finding a specialist, or a second opinion please visit:https://www.epilepsy.com/learn/diagnosis/you-and-your-healthcare-team/second-opinionshttps://www.epilepsy.com/living-epilepsy/find-epilepsy-specialist https://www.epilepsy.com/affiliates For resources and information on independent living and employment please visit:https://www.epilepsy.com/living-epilepsy/independent-living https://www.epilepsy.com/living-epilepsy/independent-living/employment-help-what-you-need-know https://www.epilepsy.com/living-epilepsy/independent-living/employment/reasonable-accommodationsLearn more about seizure medication and side effects, here:https://www.epilepsy.com/learn/challenges-epilepsy/moods-and-behavior/medications-and-moodhttps://www.epilepsy.com/learn/treating-seizures-and-epilepsy/seizure-and-epilepsy-medicines/side-effectshttps://www.epilepsy.com/learn/treating-seizures-and-epilepsy/seizure-and-epilepsy-medicines It is common for those who are in caretaker role to feel overwhelmed. It’s important to remember that you are not alone, and it is just as important to make sure you’re taking care of yourself as well. https://www.epilepsy.com/sites/core/files/atoms/files/Caregivers%20factsheet.pdf. Additionally, there are plenty of things you all can do to reduce these feelings and stay safe: https://www.epilepsy.com/learn/managing-your-epilepsy Learn seizure first aid: https://www.epilepsy.com/learn/seizure-first-aid-and-safety Learn how to live with seizures, potential risks and safety tips: https://www.epilepsy.com/learn/seizure-first-aid-and-safety/staying-safe Create a seizure response or action plan: https://www.epilepsy.com/living-epilepsy/toolbox/seizure-forms which is a helpful tool for those around your boyfriend to understand what do if he has a seizure:Use a diary: https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary Track his seizures, record his medical history, medications, side effects, moods,triggers, or other personal experiences. Have a Seizure alert device: https://www.epilepsy.com/sites/core/files/atoms/files/DAS100_Seizure_Alert_Devices_09-2018_FINAL2.pdfThe Wellness Institute: epilepsy.com/wellness ,has many helpful and easy-to-use tips & resources for maintaining a healthy lifestyle and maximizing the quality of life for you & your family. For practical & effective strategies to enhance your well-being, learn more here: https://www.epilepsy.com/living-epilepsy/toolbox/wellness-support-tools You may also contact our Epilepsy and Seizures 24/7 Helpline:1-800-332-1000, contactus@efa.org where a trained information specialist can connect you to resources, provide referrals and additional support. epilepsy.com/helpline Additionally, your local Epilepsy Foundation: epilepsy.com/localsupport, can help you find resources, support groups, events, and programs in your community

Hi nansi.cisne, Thanks so much for sharing your experience, it sounds like you all have been through a lot. It’s important that you continue to express your concerns to your boyfriend's healthcare team and discuss any changes in seizure types, frequency, side effects, behaviors and symptoms. https://www.epilepsy.com/sites/core/files/atoms/files/pg2L_HealthCareVisits_09-2018.pdf          Our new to Epilepsy & Seizure tool kit is a great resource and starting point for learning about what epilepsy is, what resources are available, how to make the most of doctors' visits, and how to take control of seizures.Learn more here:   https://www.epilepsy.com/living-epilepsy/toolbox/new-seizures-and-epilepsy For assistance and information regarding finding a specialist, or a second opinion please visit:https://www.epilepsy.com/learn/diagnosis/you-and-your-healthcare-team/second-opinionshttps://www.epilepsy.com/living-epilepsy/find-epilepsy-specialist https://www.epilepsy.com/affiliates   For resources and information on independent living and employment please visit:https://www.epilepsy.com/living-epilepsy/independent-living https://www.epilepsy.com/living-epilepsy/independent-living/employment-help-what-you-need-know https://www.epilepsy.com/living-epilepsy/independent-living/employment/reasonable-accommodationsLearn more about seizure medication and side effects, here:https://www.epilepsy.com/learn/challenges-epilepsy/moods-and-behavior/medications-and-moodhttps://www.epilepsy.com/learn/treating-seizures-and-epilepsy/seizure-and-epilepsy-medicines/side-effectshttps://www.epilepsy.com/learn/treating-seizures-and-epilepsy/seizure-and-epilepsy-medicines It is common for those who are in caretaker role to feel overwhelmed. It’s important to remember that you are not alone, and it is just as important to make sure you’re taking care of yourself as well.  https://www.epilepsy.com/sites/core/files/atoms/files/Caregivers%20factsheet.pdf. Additionally, there are plenty of things you all can do to reduce these feelings and stay safe: https://www.epilepsy.com/learn/managing-your-epilepsy Learn seizure first aid: https://www.epilepsy.com/learn/seizure-first-aid-and-safety Learn how to live with seizures, potential risks and safety tips: https://www.epilepsy.com/learn/seizure-first-aid-and-safety/staying-safe Create a seizure response or action plan: https://www.epilepsy.com/living-epilepsy/toolbox/seizure-forms which is a helpful tool for those around your boyfriend to understand what do if he has a seizure:Use a diary: https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary Track his seizures, record his medical history, medications, side effects, moods,triggers, or other personal experiences. Have a Seizure alert device:  https://www.epilepsy.com/sites/core/files/atoms/files/DAS100_Seizure_Alert_Devices_09-2018_FINAL2.pdfThe Wellness Institute:  epilepsy.com/wellness   ,has many helpful and easy-to-use tips & resources for maintaining a healthy lifestyle and maximizing the quality of life for you & your family.  For practical & effective strategies to enhance your well-being, learn more here:  https://www.epilepsy.com/living-epilepsy/toolbox/wellness-support-tools You may also contact our Epilepsy and Seizures 24/7 Helpline:1-800-332-1000, contactus@efa.org where a trained information specialist can connect you to resources,  provide referrals and additional support. epilepsy.com/helpline Additionally, your local Epilepsy Foundation: epilepsy.com/localsupport,  can help you find resources, support groups, events, and programs in your community

Hi nansi.cisne, Thanks so much for sharing your experience, it sounds like you all have been through a lot. It’s important that you continue to express your concerns to your boyfriend's healthcare team and discuss any changes in seizure types, frequency, side effects, behaviors and symptoms. https://www.epilepsy.com/sites/core/files/atoms/files/pg2L_HealthCareVisits_09-2018.pdf Our new to Epilepsy & Seizure tool kit is a great resource and starting point for learning about what epilepsy is, what resources are available, how to make the most of doctors' visits, and how to take control of seizures.Learn more here: https://www.epilepsy.com/living-epilepsy/toolbox/new-seizures-and-epilepsy For assistance and information regarding finding a specialist, or a second opinion please visit:https://www.epilepsy.com/learn/diagnosis/you-and-your-healthcare-team/second-opinionshttps://www.epilepsy.com/living-epilepsy/find-epilepsy-specialist https://www.epilepsy.com/affiliates For resources and information on independent living and employment please visit:https://www.epilepsy.com/living-epilepsy/independent-living https://www.epilepsy.com/living-epilepsy/independent-living/employment-help-what-you-need-know https://www.epilepsy.com/living-epilepsy/independent-living/employment/reasonable-accommodationsLearn more about seizure medication and side effects, here:https://www.epilepsy.com/learn/challenges-epilepsy/moods-and-behavior/medications-and-moodhttps://www.epilepsy.com/learn/treating-seizures-and-epilepsy/seizure-and-epilepsy-medicines/side-effectshttps://www.epilepsy.com/learn/treating-seizures-and-epilepsy/seizure-and-epilepsy-medicines It is common for those who are in caretaker role to feel overwhelmed. It’s important to remember that you are not alone, and it is just as important to make sure you’re taking care of yourself as well. https://www.epilepsy.com/sites/core/files/atoms/files/Caregivers%20factsheet.pdf. Additionally, there are plenty of things you all can do to reduce these feelings and stay safe: https://www.epilepsy.com/learn/managing-your-epilepsy Learn seizure first aid: https://www.epilepsy.com/learn/seizure-first-aid-and-safety Learn how to live with seizures, potential risks and safety tips: https://www.epilepsy.com/learn/seizure-first-aid-and-safety/staying-safe Create a seizure response or action plan: https://www.epilepsy.com/living-epilepsy/toolbox/seizure-forms which is a helpful tool for those around your boyfriend to understand what do if he has a seizure:Use a diary: https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary Track his seizures, record his medical history, medications, side effects, moods,triggers, or other personal experiences. Have a Seizure alert device: https://www.epilepsy.com/sites/core/files/atoms/files/DAS100_Seizure_Alert_Devices_09-2018_FINAL2.pdfThe Wellness Institute: epilepsy.com/wellness ,has many helpful and easy-to-use tips & resources for maintaining a healthy lifestyle and maximizing the quality of life for you & your family. For practical & effective strategies to enhance your well-being, learn more here: https://www.epilepsy.com/living-epilepsy/toolbox/wellness-support-tools You may also contact our Epilepsy and Seizures 24/7 Helpline:1-800-332-1000, contactus@efa.org where a trained information specialist can connect you to resources, provide referrals and additional support. epilepsy.com/helpline Additionally, your local Epilepsy Foundation: epilepsy.com/localsupport, can help you find resources, support groups, events, and programs in your community

Thank you very mucb for the

Submitted by nansi.cisne on Sat, 2019-08-03 - 15:47

Thank you very mucb for the information. We are currently still waiting for a referral.

<a href="https://gph.is

Submitted by PoisonJay on Tue, 2019-09-03 - 02:17

<a href="https://gph.is/2bZufS7">Hey!</a> Hope he's feeling better and you're too. I know it's kind of scary when this happens but you have to be strong and support him!