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Have I got TLE?
Wed, 12/11/2019 - 11:15Topic: New to Epilepsy.com
Hi everyone,
3 weeks ago now I started having these experiences and after googling ‘dejavu that causes nausea’ I ended up reading page after page of people with the same experiences and to my surprise and horror if I’m honest people saying it’s TLE!
So just under three weeks ago I got up for work, normal day, not feeling unwell, well rested etc. I got in the shower and BANG. I experienced something at the time I couldn’t explain, other than a dejavu of a dream I’ve had that terrified me, made me so nauseous I vomited and gave me a intense ringing/buzzing in my ears. When I came round (even though I didn’t black out) I realised I’d never had this ‘dream’ and I was then overwhelmed by what I can only describe as a temporary and extreme depression and exhaustion.
Since this first experience I’ve had a further 6. All varying in intensity. All making feel either vomit or feel the worst sickness I’ve ever known. Then the big drop after into a pretty dark place. Most times it happens I’m very relaxed and doing chilled out things that I do everyday. I’ve not had one yet when I’ve been engaged by something or someone so don’t know if that is a link?
I went to the doctors yesterday who did ask a lot of mental health questions and I did need to push him to believe me that this is not a mental health issue.
He has given me a check up which was all normal. Referred me for blood test and to see a neurologist.
I am a 26 year old female. I take no medication. No illegal drugs. I don’t smoke. My BMI is normal. I eat well. Have a active lifestyle. I don’t have any family history of a mental health issues or seizures. I am happy and love my family, life and job. So I will not settle for ‘PTSD, panic attacks, anxiety, depression’ etc because I’ve lived a happy and sheltered life and have no history of any illness, mental or physical.
Can anyone help. Does anyone else have this or something similar?
Thank you :)
Comments
Hi Mike thanks for replying.I
Submitted by EmilyB_5df11112e72ac on Thu, 2019-12-12 - 03:34
Hi Mike thanks for replying.I don’t feel knowledgable at all. It was just by luck a Google’s the right thing that led me hear. Before that I must admit I thought I was going mad. I have a million questions about it. I do feel like my life has just changed and that everything is in limbo until these appointments and results. One thing you’ve mentioned and that I have seen come up was problems in childhood. I had a fever when I was young and I remember my mum saying my grandad had to hold my under cold water in the bath because my eyes were rolling back... coincidence maybe? I must have been about 3/4? Another thing I’ve read is traumatic birth using vacume and forceps causing temporal lobe damage? I had a very rough and traumatic birth using both of these. My baby photos I have forcep cuts and bruises on my face. Maybe another coincidence?Some questions I do have is if a EEG and CT scan shows nothing but my symptoms are showing epilepsy what will the treatment be? Will I have to stop driving even though I don’t black out? If so for how long?And does TLE often lead to bigger seizures?Thanks again for reply I won’t go on anymore :)
Mention all your birthing
Submitted by birdman on Thu, 2019-12-12 - 08:46
Mention all your birthing issues and fevers to the neurologist; I'm sorry to say, but they tell me the encephalitis I had at six months old is a common cause of TLE. When they do CT and MRI those are to rule out possible physical causes. Epileptic seizures can continue even without structural evidence. Someone from the Epilepsy Foundation will probably send a reply and can give you links to the driving rules and more information. I need to hurry off to my epilepsy appointment where doc will adjust my RNS system.later,Mike
Emily,Wow! For a person who
Submitted by birdman on Wed, 2019-12-11 - 20:34
Emily,Wow! For a person who has only suffered and studied the subject for three weeks you are very knowledgeable on the subject.You said that doctors asked "mental health" questions. I imagine a general practitioner would ask more of these as he or she would be less trained in recognizing and diagnosing neurological symptoms. Also, drug problems are high now and I'm sure they need to at least rule out this possibility. And of course every doctor is searching for answers on why the seizures just started a few weeks ago. It's not always easy to figure out but hopefully a neurologist will help.I started having the "funny feelings" when I was almost in grade school. I'm told my pediatrician didn't take it too seriously. After years of increased seizures epilepsy was confirmed. We always wondered caused my condition and doctors largely conclude that it was from a high fever I had when I was six months old! I find it fascinating that an infection in infancy could not show its consequences for several years.Once you've been diagnosed with "epileptic seizures" the next step will be to determine if drug therapy works to control them. hopefully you are one of the 70% who get comfortable control with medication. But to be prepared you can chart all your seizures and medications so that if you can't rely upon meds you will be more ready for talks with epilepsy specialists about alternatives. I use a spreadsheet for charting my medical info.Again you are so knowledgeable I don't know how much more I can say. Feel free to ask specific questions.Mike