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How to use Cannabis for my Epileptic child

Tue, 12/03/2019 - 02:41
My daughter's age is 4 years and 7 months. She was diagnosed with Epilepsy at the age of 1 and she has been taking Epival (500mg) Tablet ( 1 in morning and 1 in evening) and Lariase (5ml morning and 5 ml evening. She is now fitz free from past 6 months but the doctor said we need to continue the medicine for 2 more years. According to her doctor she has to be fitz free for 2 years. But the doctor decreased Epival dosage ( 250mg morning and 500mg evening) because of the side effects. Following were the side effects found in tests. The readings of the report are as follows. Thyroid T3 Total 0.99 ng/mL Desired Limit: 1.19-2.18 T4 Free 0.91 ng/dL Desired Limit: 0.70 - 1.48 TSH 27.50 uIU/ml Desired Limit: 0.85-6.5 Valproic Acid 145.31 ug/mL Desired Limit: 50 - 100 Serum Total Calcium 7.9 mg/dL Desired Limit: Adult: 8.4 - 10.2- Children: 7.6 - 11.0 Platelet Count 59,000 /mm3 Desired Limit:150,000 - 450,000 Glucose (Random) 77 mg/dL Desired Limit:80 - 200 Sodium 137 mmol/L Desired Limit: 136 - 145 Potassium 4.3 mmol/L Desired Limit:3.5 - 5.3 Other physical side effects are as follows. 1. She is gaining weight, over all body swelling (minor) 2. She is complaining about the pain in knees. 3. Her right foot slips or gets imbalanced and she fells down.It sometimes happens only after few steps. 4. She would not move forward after stepping few stairs Currently she is having these medicines 1. Epival divalproex sodium (25mg morning, 500mg evening) 2. Lerace (Leveliteracetam) 100mg/ml( 5ml morning, 5ml evening) 3. Iberet 500 Liquid - Iron, Vatamic C & B Complex - 5ml evening) 4. Multibionta syrup - A, C, D & B Complex - 2.5ml morning - 2.5ml evening I have RAW Cannabis flower (bud) in the following forms. 1. High THC (25%) & High CBD (23%) (Strain:Super Critical CBD by Garden of Green ) 2. HIGH CBD (20%) NO THC (Strain:Dr Seedsman by Seedsman) 3. HIGH THC (20%) No CBD (Strain:Phantom OG by Barney's Farm Seed) My request is to guide me thourgh: 1. What strains from above mentioned should i choose? 2. How can I make a medicinal infused cannabis oil? 3. How to select the correct ratios of oil and flower combination etc? 4. What dosage should I give her as medicine for curig Epilepsy? 5. Once I start the dosage should I stop the medicine mentioned above if not then how to reduce the medicine? 6. What procedure should I follow to make a safe application for her?(she is just 4.7 years old) as I don't want to take any risks. Your valuable comments and suggestion will be highly appreciated. A concerned father

Comments

Hi, Thank you for posting, we

Submitted by Anonymous on Tue, 2019-12-03 - 10:04
Hi, Thank you for posting, we are glad to hear that your daughter has been seizure free for six months, that’s fantastic news! Treatment and how the body may react to certain medications varies for each individual. The goal of treatment with medicines should be –No Seizures and No Side Effects. However,we know that some individuals may experience too many side effects, that are very bothersome or cause other health problems. To learn more about medications she takes, please visit: https://www.epilepsy.com/learn/treating-seizures-and-epilepsy/seizure-and-epilepsy-medicines/side-effectsPrior to making in changes to her treatment plan it’s important you’re continuing to follow-up with her healthcare team, to determine what’s best for her and if she experiences any changes side effects, symptoms, seizure types/ frequency and behaviors. If you feel you cannot talk openly with her healthcare team, or that you aren’t working towards the same goals, it may be time to get a second opinion. For information regarding second opinions, or assistance finding an epileptologist (epilepsy specialist) near you, please visit:https://www.epilepsy.com/learn/diagnosis/you-and-your-healthcare-team/second-opinions https://www.epilepsy.com/living-epilepsy/find-epilepsy-specialistTo learn about complementary health approaches to epilepsy, please visit: https://www.epilepsy.com/learn/treating-seizures-and-epilepsy/complementary-health-approaches You can learn more about CBD oil here: https://www.epilepsy.com/learn/treating-seizures-and-epilepsy/other-treatment-approaches/medical-marijuana-and-epilepsy It’s common for those who are in caretaker role to feel overwhelmed. It’s important to remember that you are not alone, and it is just as important to make sure you’re taking care of yourself as well.https://www.epilepsy.com/living-epilepsy/parents-and-caregivers  It can be helpful to connect with other parents who may have similar experiences, to ask questions, find & give support to each other, by visiting:  https://www.epilepsy.com/living-epilepsy/parents-and-caregivers/parents-helping-parents  Additionally, you may always contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources. 1-800-332-1000, or contactus@efa.org. epilepsy.com/helpline 

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