Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
my epilepsy story
Sun, 09/15/2019 - 15:50Topic: New to Epilepsy.com
Hi my name is Kayla when I was a baby at one years old I had a tumor in my left temporal lobe of my brain that caused me to have epilepsy. when I was around 2 and 3 years old I tried to take medication but medication never worked and when I was 7 I had surgery and I’ve been seizure free since. because of the surgery I ended up with a blind spot in my right eye we’re I can’t see what’s behind me but I can see what’s in front of me and because of the surgery I had I’m not able to wear glasses.
HiOcelotBeauty, Thanks so
Submitted by Anonymous on Mon, 2019-09-16 - 09:52
HiOcelotBeauty, Thanks so much for sharing your story. We are happy to hear that you have been seizure free since your surgery, but we understand that experiencing some vision loss in your right eye as a result of the procedure, can be very challenging. It’s important to remember that you are not alone. However, we know that being diagnosed with epilepsy can be upsetting and make you feel isolated. One of the most important things to help you live with epilepsy is to find a support networkIt can be helpful to connect with other people who live with epilepsy, to ask questions, share experiences, find& give support to each other. Learn more about your community support, here:support, here: https://www.epilepsy.com/learn/challenges-epilepsy/social-concernsAdditionally, you may also contact our Epilepsy and Seizures 24/7 Helpline: 1-800-332-1000 contactus@efa.org, where a trained information specialist can connect you to resources, provide referrals and additional support. epilepsy.com/helpline Recovering from epilepsy surgery is a journey.Learn more about the recovery process and common themes for people living with epilepsy & family members during their journey through epilepsy surgery,here: https://www.epilepsy.com/learn/treating-seizures-and-epilepsy/surgery/recovery-and-life-after-surgery It’s also important to recognize that epilepsy is more than just seizures, overall well-being and emotional health is just as important: https://www.epilepsy.com/living-epilepsy/healthy-living/emotional-health The Wellness Institute: epilepsy.com/wellness ,has many helpful and easy-to-use tips & resources for maintaining a healthy lifestyle and maximizing the quality of life for you & your family. For practical & effective strategies to enhance your well-being, learn more here: https://www.epilepsy.com/living-epilepsy/toolbox/wellness-support-tools