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My Experience....
Sat, 02/15/2020 - 20:23Topic: New to Epilepsy.com
When I was 7, that was the start of it all. I was leaving gym class when I had my first episode. I fell to the floor, it felt like someone was pushing on my back. Everything around me felt far away around me, echoing voice’s of my friends. When I felt myself being picked up and started crying. When I was 14, I had my first surgery and had to spend at least, 20 days there.I recently had another surgery to help with my with my seizures. With this surgery, I lost use of my right arm and hand. With PT and OT, I gained 90% back.
Comments
Hi, Thank you for sharing
Submitted by Anonymous on Tue, 2020-02-18 - 09:04
Hi, Thank you for sharing your experience, it sounds like you’ve been through a lot. Recovering from epilepsy surgery is a journey and every individual experience and path is different. https://www.epilepsy.com/learn/treating-seizures-and-epilepsy/surgery/recovery-and-life-after-surgery Losing the use of your right arm and hand as a result of your surgery must be very challenging and are glad that your PT & OT has helped you with this. We understand that living with epilepsy is more than just knowing your type of seizures or what medicine to take. It also means learning how to handle the way epilepsy affects your life including your physical well-being, social and emotional health. https://www.epilepsy.com/living-epilepsy/healthy-livingOne of the most important things to help you live with epilepsy is to find a support network. The Epilepsy Foundation has many resources available that can help you find your support network by contacting our 24/7 Helpline: 1-800-332-1000,contactus@efa.org, or contact your local Epilepsy Foundation: https://www.epilepsy.com/affiliates to join a support group and access to local & national resources. In addition to the forums, connect with others in our online community & participate in our online chat room: https://www.epilepsy.com/connect/chat
I'm so glad you are doing
Submitted by Christian Salata on Fri, 2020-02-21 - 10:49
I'm so glad you are doing better ill be praying for you
Has anyone been on Felbamate
Submitted by Lilith926 on Mon, 2020-02-17 - 11:27
Has anyone been on Felbamate(SP?), and notice lost in weight???