New Teacher Here-Tonic-Clonic Seizures

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Hi, everyone. I was diagnosed with generalized convulsive seizures in May after I suffered a TIA (Transient Ischemic Attack-Mini Stroke) which led into a Tonic-Clonic (Grand Mal) Seizure. I suffered from seizures when I was an infant, but they stopped by the age of two. The doctors said that if I did not have another one, then I would be fine. Well, in May I was a month and a half shy of turning 30 and...well...that's when this all happened. I have not had another one since then and I am on medication. I feel like I haven't been the same ever since the seizure. I have since had migraines and have medicine for that as well (thank goodness lol). I am a teacher. It is my passion. It is what I am meant to do with my life and I do worry about my seizure disorder affecting this, because if I were to be told that I could not teach I would be absolutely devastated. I especially worry about this because of the types of seizures that I have (of course it has to be the rare, tonic-clonic seizure right, lol). I always try to keep my sense of humor. It's what gets me through the tough times, but if there are any other teachers out there that suffer from a seizure disorder I would love to hear from you!

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Hi HakunaMatata23, Thanks

Submitted by Anonymous on Thu, 2019-10-03 - 09:21

Hi HakunaMatata23, Thanks so much for sharing your story, it sounds like you’ve been through a lot. It's important that you discussed your concerns and any changes in seizure types, frequency, behaviors, side effects and symptoms with your healthcare team, to determine what individual treatment plan is best for you. We are happy to hear that you have a career that you’re passionate about! We also understand your concerns and know this can feel overwhelming. A key part of managing seizures is knowing how it can affect a person's independence and day-to-day needs. Visit our independent living pages and explore our employment section, to learn more about your legal rights, reasonable accommodations and resources that are available to help: https://www.epilepsy.com/living-epilepsy/independent-living Additionally, you may want to consider creating a seizure response or action plan: https://www.epilepsy.com/living-epilepsy/toolbox/seizure-forms which is a helpful tool for those around you to understand what to do if you have a seizure. Use a journal or diary,to track your seizures, record your medical history, medications, side effects, moods, triggers, or other personal experiences. https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary Review our seizure alert device factsheet with your doctor, to see if a seizure alert device is an option for you: https://www.epilepsy.com/sites/core/files/atoms/files/DAS100_Seizure_Alert_Devices_09-2018_FINAL2.pdfLearn more about seizure first aid & safety that you can share with your family, friends & colleagues, here: https://www.epilepsy.com/learn/seizure-first-aid-and-safety/first-aid-seizures-stay-safe-side You may always contact our Epilepsy and Seizures 24/7 Helpline: 1-800-332-1000 contactus@efa.org, where a trained information specialist can connect you to resources, provide referrals and additional support.epilepsy.com/helpline Or contact your local Epilepsy Foundation at: https://www.epilepsy.com/affiliates to find support groups, events, and programs in your community.

Hi HakunaMatata23,   Thanks so much for sharing your story, it sounds like you’ve been through a lot. It's important that you discussed your concerns and any changes in seizure types, frequency, behaviors, side effects and symptoms with your healthcare team, to determine what individual treatment plan is best for you. We are happy to hear that you have a career that you’re passionate about! We also understand your concerns and know this can feel overwhelming. A key part of managing seizures is knowing how it can affect a person's independence and day-to-day needs. Visit our independent living pages and explore our employment section, to learn more about your legal rights, reasonable accommodations and resources that are available to help:  https://www.epilepsy.com/living-epilepsy/independent-living  Additionally, you may want to consider creating a seizure response or action plan: https://www.epilepsy.com/living-epilepsy/toolbox/seizure-forms which is a helpful tool for those around you to understand what to do if you have a seizure.  Use a journal or diary,to track your seizures, record your medical history, medications, side effects, moods, triggers, or other personal experiences. https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary Review our seizure alert device factsheet with your doctor, to see if a seizure alert device is an option for you: https://www.epilepsy.com/sites/core/files/atoms/files/DAS100_Seizure_Alert_Devices_09-2018_FINAL2.pdfLearn more about seizure first aid & safety that you can share with your family, friends & colleagues,  here: https://www.epilepsy.com/learn/seizure-first-aid-and-safety/first-aid-seizures-stay-safe-side  You may always contact our Epilepsy and Seizures 24/7 Helpline: 1-800-332-1000 contactus@efa.org, where a trained information specialist can connect you to resources, provide referrals and additional support.epilepsy.com/helpline  Or contact your local Epilepsy Foundation at: https://www.epilepsy.com/affiliates to find support groups, events, and programs in your community. 

Hi HakunaMatata23, Thanks so much for sharing your story, it sounds like you’ve been through a lot. It's important that you discussed your concerns and any changes in seizure types, frequency, behaviors, side effects and symptoms with your healthcare team, to determine what individual treatment plan is best for you. We are happy to hear that you have a career that you’re passionate about! We also understand your concerns and know this can feel overwhelming. A key part of managing seizures is knowing how it can affect a person's independence and day-to-day needs. Visit our independent living pages and explore our employment section, to learn more about your legal rights, reasonable accommodations and resources that are available to help: https://www.epilepsy.com/living-epilepsy/independent-living Additionally, you may want to consider creating a seizure response or action plan: https://www.epilepsy.com/living-epilepsy/toolbox/seizure-forms which is a helpful tool for those around you to understand what to do if you have a seizure. Use a journal or diary,to track your seizures, record your medical history, medications, side effects, moods, triggers, or other personal experiences. https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary Review our seizure alert device factsheet with your doctor, to see if a seizure alert device is an option for you: https://www.epilepsy.com/sites/core/files/atoms/files/DAS100_Seizure_Alert_Devices_09-2018_FINAL2.pdfLearn more about seizure first aid & safety that you can share with your family, friends & colleagues, here: https://www.epilepsy.com/learn/seizure-first-aid-and-safety/first-aid-seizures-stay-safe-side You may always contact our Epilepsy and Seizures 24/7 Helpline: 1-800-332-1000 contactus@efa.org, where a trained information specialist can connect you to resources, provide referrals and additional support.epilepsy.com/helpline Or contact your local Epilepsy Foundation at: https://www.epilepsy.com/affiliates to find support groups, events, and programs in your community.