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Parents of Children with Absence Seizures

Tue, 01/08/2019 - 20:06
New to here- looking for other parents of children who were diagnosed with epilepsy 18 months or younger. My daughter was diagnosed at 17 months old and is now a few months away from being 4. She is now just 1 year of being seizure free on meds. We are now seeing some developmental delays and are looking for other parents that are either going through it or went through it. Feeling scared.

Comments

What does your neurologist

Submitted by Amy Jo on Wed, 2019-01-09 - 07:30
What does your neurologist suggest? Are the delays cognitive or language related? Has she had an overnight EEG? Sometimes cognitive delays are associated with patterns they’d see on EEGs that cover full night’s sleep cycles. Those are associated with different epilepsies but re-evaluating epilepsy is reasonable response if there are no other explanations.Our child was not diagnosed with absence so young. We have seen cognitive issues improve with an increase in medication but the medication was for partial seizures. Our child’s absence seizures appeared a few years after the initial diagnosis and are atypical without the usual cognitive issues atypical absence has. So we’ve certainly seen epilepsy change over years. We had to do a multi day EEG where meds were rapidly weaned to see the generalized seizures. It was surprising, completely changed our treatment plan.

I had my first serizure at

Submitted by msanders21989 on Fri, 2019-02-08 - 22:55
I had my first serizure at about the 17th months, which have been uncontolled ever since, and although I suffer short-term memory impairment, I other-wise grew-up  passing through all life mile stones ok. The delays may just simply be delays, that she will eventually catch up to as she grows up.

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