Community Forum Archive

questions and more questions

Thu, 10/31/2013 - 14:20
I was diagnosed two weeks ago with Epilepsy and had my license taken and took back my car (rent to own) but have not met with a doctor yet to even ask questions about this?? I am not on medication nor do I want to be...but do most people get told something like this and then wait? I also feel kinda weird...I mean, I have complex partial seizures and most likely have had this my whole life. I don't know why they took my Driver's away as well...what is my condition? okay, I blacked out for like seconds one time...and I remember another time in grade 10...maybe I have them during the day and I get exhausted...but I'm no different...I'm 46 never once hit anyone on the road...rear ended or anything. I had to quit my job because it was nights and I couldn't drive there..and no buses nor will I take buses at midnight....I am in school so a daytime job will come soon....not sure if I can go on disability and work part time...more for me it's the fatigue that kills me...I feel capable and not at the same time...i'm so confused and have no idea where the hell I am !

Comments

Re: questions and more questions

Submitted by just_joe on Thu, 2013-10-31 - 15:41

lots of questions you want answers to.

As for not driving most states have laws that are there as a precaution. You stated you blacked outfor a few seconds one timeand you remember another time in 10th grade. So that would be at least 2 times you blacked out. How long were you blacked out? was it a second a few seconds or a mintue? Think about what could happen if you were behinde the wheen of your car and you blacked out? Think hard because all it takes is a second to have a car accident. States are the ones that set the requirement as to how long a person has to go without a seizure before getting their license back. Doctors are required to have your license pulled because of the laws.

Now you stated you were diagnosed 2 weeks ago. Was it a doctor that gave you the diagnosis? If it was then why didn't you ask some questions then? If you were diagnosed by a doctor he should have set up a date for you to go in and discuss issued procedures and medications. That is generally done even if you went to a ER.

You may think I am a little hard but I am trying to help explain issues people with epilepsy have to deal with daily. What have you been taught about epilepsy or have you just heard things from the population you're around. Understand too that there are many people out there that have epilepsy that are now or have been for years that are driving,working,going to school,managing a business and even business owners. You can still do many different things and you could become seizure free.

Now a bit of history. I was written up for day dreaming. I had some wierd feelings in my hand now adn then. I also had a funny feeling in my head now and then those things are normal to many people and kids. I was a kid back then. The first seizure I know I had was a grande mal seizure which is convulsive. It took over a year to get a diagnosis. All my EEG's came out normal and there weree about 15. So wwhat was causing the convulsions I was having? What was it that was making my right hand rise up while I wanted it left by my side.Why did I have a funny feeling in my head? Why was I written up for day dreaming when pop quizes showed i understood what was said during class.

All those little things were seizures. Auras,absence seizures,partial seizures,complex partial seizures generalized seizures, tonic clonic, fcal motor seizures and yes grand mal seizures. My epilepsy can start with an aura which can morph into any of the other seizures.

If I were you I would contact the office you were diagnosed at and asked them if you were set up with an appointment. Ask which doctor diagnosed you and find out drom them if they have a date for your visit. Ilst all your questions. Ask what options you have what procedures there are and which medications might be best to resolve your issue. Ask him when you might get your license back. But by all means give him respect and he will generally give you the respect you desirve. If the answers are medication well deal with it becasue that medication might  help control the seizures. What you might have had is what many might call a break thru seizure. Those happen now and then to many of us. If you had gone as long as you did without medication  understand that you could have had seizures without knowing you had them. Day Dreaming  and auras for me yet the other seizures broke thru and those were focal motor seizures and grande mal seizures. There is a difference in one you are aware of everything going on around you but you are strill in a convulsion which looks like a grande mal.

I have many types of seizures nad the epilepsies I have are 3 which all have many different types of seizures

If you have issues and want help by all means start a post there are many of us that want to help. We also want to make people aware that anybody can have seizures and that having epilepsy can be dealt with.

I hope you take this th way it is intended and I hope you get your questions answered. I have been dealing and living with epilepsy for 50+ years. I have never driven. I have gone months without a seizure. I also went over 3 years without a seizure. My cousin had some in here younger days and she has been seizure free for many years now.

Joe

lots of questions you want answers to.

As for not driving most states have laws that are there as a precaution. You stated you blacked outfor a few seconds one timeand you remember another time in 10th grade. So that would be at least 2 times you blacked out. How long were you blacked out? was it a second a few seconds or a mintue? Think about what could happen if you were behinde the wheen of your car and you blacked out? Think hard because all it takes is a second to have a car accident. States are the ones that set the requirement as to how long a person has to go without a seizure before getting their license back. Doctors are required to have your license pulled because of the laws.

Now you stated you were diagnosed 2 weeks ago. Was it a doctor that gave you the diagnosis? If it was then why didn't you ask some questions then? If you were diagnosed by a doctor he should have set up a date for you to go in and discuss issued procedures and medications. That is generally done even if you went to a ER.

You may think I am a little hard but I am trying to help explain issues people with epilepsy have to deal with daily. What have you been taught about epilepsy or have you just heard things from the population you're around. Understand too that there are many people out there that have epilepsy that are now or have been for years that are driving,working,going to school,managing a business and even business owners. You can still do many different things and you could become seizure free.

Now a bit of history. I was written up for day dreaming. I had some wierd feelings in my hand now adn then. I also had a funny feeling in my head now and then those things are normal to many people and kids. I was a kid back then. The first seizure I know I had was a grande mal seizure which is convulsive. It took over a year to get a diagnosis. All my EEG's came out normal and there weree about 15. So wwhat was causing the convulsions I was having? What was it that was making my right hand rise up while I wanted it left by my side.Why did I have a funny feeling in my head? Why was I written up for day dreaming when pop quizes showed i understood what was said during class.

All those little things were seizures. Auras,absence seizures,partial seizures,complex partial seizures generalized seizures, tonic clonic, fcal motor seizures and yes grand mal seizures. My epilepsy can start with an aura which can morph into any of the other seizures.

If I were you I would contact the office you were diagnosed at and asked them if you were set up with an appointment. Ask which doctor diagnosed you and find out drom them if they have a date for your visit. Ilst all your questions. Ask what options you have what procedures there are and which medications might be best to resolve your issue. Ask him when you might get your license back. But by all means give him respect and he will generally give you the respect you desirve. If the answers are medication well deal with it becasue that medication might  help control the seizures. What you might have had is what many might call a break thru seizure. Those happen now and then to many of us. If you had gone as long as you did without medication  understand that you could have had seizures without knowing you had them. Day Dreaming  and auras for me yet the other seizures broke thru and those were focal motor seizures and grande mal seizures. There is a difference in one you are aware of everything going on around you but you are strill in a convulsion which looks like a grande mal.

I have many types of seizures nad the epilepsies I have are 3 which all have many different types of seizures

If you have issues and want help by all means start a post there are many of us that want to help. We also want to make people aware that anybody can have seizures and that having epilepsy can be dealt with.

I hope you take this th way it is intended and I hope you get your questions answered. I have been dealing and living with epilepsy for 50+ years. I have never driven. I have gone months without a seizure. I also went over 3 years without a seizure. My cousin had some in here younger days and she has been seizure free for many years now.

Joe

Re: questions and more questions

Submitted by joanneph on Thu, 2013-10-31 - 16:06
Hi Joe, I do not take offense and thank you for your response. I was diagnosed by a Neurologist after doing a sleep study for narcolepsy, and two EEG's..one was a sleep deprived where I did have a seizure. Now, I got my results from my family doc long before I got called in to "the meeting". But I did a few things before hand...like call Alberta Transportation which got my DL # just for asking a question...they took my license...my Neurologist told me that the tests were unusual and that I have epilepsy and that I will be put on medication for them and the occipital neuralgia that I have as well. That's it...I told her I am just finishing school so do not wish to go on pills at the moment and she told me the epilepsy clinic will contact me but that could be a few months. Then excused me! So, I could not ask questions there...I have done alot of reading on my own for sure. This may sound petty or weird...but in the last two weeks...i've been told I have this...had my license taken, my car taken and lost my job. I'm kinda sitting here going wtf!! I feel so normal other than the fatigue I feel...I do know I think when I have a seizure or an aura...but i'm still learning...I get exhausted and that must be the epilepsy....I slow right down.....so...I just want to know...are these the times I'm having a seizure and why is my memory bad..these last seconds...in fact at work I had one as I was talking to my supervisor...she didn't see anything...but I knew in my head....I was aware of what was happening to me...but sometimes...I feel I have a really really bad memory...that worries me. I kinda just really feel lost at this point in my life...I guess I need to regroup or something. Oh, just so you have background well I've had hallucinations....but I also see spirit, I have a bad memory but I have ESP....I have been a counselor for over 16 years...but not the past 5....I just feel really confused is all. Thanks for the support and answering my email. JO

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