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Traumaticed

Sun, 11/17/2019 - 20:32
Hi! I am scared to death after what happened and need to talk to others who has been in this situation! 3 days ago, me and my fiancee arrived at his brother's house for breakfast at 6.45 am. After 2 minutes (we dere still outside), my fiancee suddenly stiffened, and fell. He hit the asfalt really hard, and he didn't make any sound. Then he started shaking. His brother and I ran over to check on him. He had a hole in his head, he was unconcious and he was shaking. He has never had anything like this happen before, so we were totally unprepared. I called 911 while his brother held his head. After 6 minutes, the seizure stopped, but he was still unconcious, and then he stopped befatning! We gave him first aid as told, and the ambulance was on their way, but they spent 15 minutes getting there! After 2 minutes of first aid, he started breathing again, but that felt like for ever, and he was still unconcious. He woke up in the ambulance, but he was scared and confused and he couldn't remember the last 2 hours. We spent the next 24 hours at the hospital, but then he refused to be there any longer... He had several more seizures at the hospital - different kinds - from what I can tell from these pages: the first one was tonic-clonic. Then he had MANY absence seizures, focal onset aware seizures, and myoclonic seizures. He is 34 years old, has never had anything like this, and suddenly has all of this. His heart rate has changed too, and he sometimes suddenly stoppes breathing for a few seconds, and sometimes he is kind of suffocated. Obviously I need to get him back for more tests, but it's obvious it's some form of epilepsy. However, in addition to wanting all the information I can get about this, I am scared to death and I need to talk to someone in my situation (og similar situation). I haven't slept since it happened (3 days) because I can't close my eyes without seeing the image of his lifeless body on the ground, my own hands and all my clotes full of blood, his brother's voice screaming that he isn't breathing, and (at the hospital) my tough, strong, independent, tattoo-covered, grown man crying, while holding my hand tight, saying "please, don't leave, I'm scared and I need you. Can you hold me?" (not that I was going to leave anyway btw). The other reason I can't sleep, is because I feel the need to make sure he is breathing, and that his heart is beating. I lie for hours just listening to his heartbeat and his breathing ... Any advice? I feel like I have a legit reason for this behavior, but I also know that I can't keep doing this. He is sleeping next to me right now. There is no way in hell that I am able to sleep. I know I am walking around like a zombie and that I need to take care of myself aswell, but I can't sleep, I need to hear his heart beating ...

Comments

Hello, I’m a licensed

Submitted by Patriotrehab on Mon, 2019-11-18 - 00:19
Hello, I’m a licensed clinical social worker and certified rehabilitation counselor as well as a person with epilepsy. While someone from the epilepsy foundation will probably be responding to you during the week and I’m happy to talk to you about any specific questions that you have, perhaps you may want to call the 24/7 Helpline https://www.epilepsy.com/living-epilepsy/247-helpline so that you can talk to someone immediately. The number is 1-800-332-1000. 

Hi, Thank you so much for

Submitted by Anonymous on Mon, 2019-11-18 - 09:43
Hi, Thank you so much for posting and we understand that must have been very scary and upsetting for you all to experience. It’s common for those who are in caregiver role to feel overwhelmed. It’s important to remember that you are not alone, and it is just as important to make sure you’re taking care of yourself as well. https://www.epilepsy.com/sites/core/files/atoms/files/Caregivers%20factsheet.pdfAs Gianna mentioned in her comment, you may always contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help,hope, support, guidance, and access to national and local resources. 1-800-332-1000, or contactus@efa.org. epilepsy.com/helpline It’s also important that you all are following up with your fiance's healthcare team, to express your concerns and if he experiences any changes in seizure types/frequency, symptoms, side effects symptoms, behaviors and moods, to determine what individual treatment plan is best him. For assistance finding an epileptologist, (epilepsy specialist) near you, please visit:https://www.epilepsy.com/living-epilepsy/find-epilepsy-specialist Our new to Epilepsy & Seizure tool kit is a great resource and starting point for learning about epilepsy, what resources are available, how to make the most of doctors' visits, and how to take control of seizures, seizure first aid & safety, & find self-management tools. Learn more here: https://www.epilepsy.com/living-epilepsy/toolbox/new-seizures-and-epilepsy

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