Coping with seizures

Hi, Thank you&nbsp;for posting, it sounds like you all have been through a lot. It’s common for&nbsp;those who are in caregiver role to feel overwhelmed. It is just as important&nbsp;to make sure you’re taking care of yourself as well.https://www.epilepsy.com/living-epilepsy/parents-and-caregivers&nbsp; Every parent is different in how they cope with their child's epilepsy.&nbsp;It is important to find someone you trust to talk about these concerns&nbsp;and worries. It is not unusual for each parent of the child to process information&nbsp;differently. Some confide in their partner and others to close friends&nbsp;and family, or your child’s doctor or other professionals they work with&nbsp;(such as nurses and social workers) are also good resources. It may also &nbsp;be helpful to connect&nbsp;with other parents who may have similar experiences, to ask questions,find &amp; give support to each other, by visiting: https://www.epilepsy.com/living-epilepsy/parents-and-caregivers/parents-helping-parents&nbsp; The "Toll of Caregiving in Parents of Children with Medical Issues", is a three part webinar series focused on way to equip parents with tools to help&nbsp;them navigate stressors when caring for a child with a chronic health condition, here:&nbsp;http://ring14usa.com/index.php/2019/04/29/toll-of-caregiving-webinars/<strong></strong>Additionally, you may always&nbsp;contact our 24/7 Helpline, where trained information specialists are available to&nbsp;answer your questions, offer help, hope, support, guidance, and access to national&nbsp;and local resources. 1-800-332-1000, contactus@efa.org. epilepsy.com/helpline&nbsp;&nbsp;&nbsp;&nbsp;Or contact your local Epilepsy Foundation: https://www.epilepsy.com/affiliates , find support groups, events, and programs in your community.&nbsp;

Hi my name is Lisa and my son is 2.5 years old and has been having seizures since 6 months. He has a mutated gene of the SCN1A and falls on a spectrum. Our story is very similar to yours. Every time he gets sick fever or not, he has seizures that end up with an ambulance call and at least one night stay at the hospital. I feel like I'm all alone in this and I can't cope.&nbsp;