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Side Effect of Tegretol in kids?
Mon, 11/11/2019 - 11:58Topic: Parents & Caregivers
My son started having focal seizures second day of his life. All his test results were normal and DNA results show one variance in one gene but they couldn't conclude that is the cause of his seizures. He's on Tegretol and that medicine has stopped the seizure since 1 month old. My question is, are there parents out there with kids on Tegretol for long term? Have you seen side effect of the medicine as kids get older? whether on medicine or weened off. Thank you.
Hi, Thanks so much for
Submitted by Anonymous on Tue, 2019-11-12 - 08:38
Hi, Thanks so much for posting, it sounds like you all have been through a lot. Treatment and medications varies for each individual. It's important that you all continue follow-up with your son’s healthcare team to express your concerns and if you all observe any changes in side effects, seizure types, frequency, behaviors and symptoms, to determine what individual treatment is best for himhttps://www.epilepsy.com/sites/core/files/atoms/files/pg2L_HealthCareVisits_09-2018.pdf . Our new to Epilepsy & Seizure tool kit is a great resource and starting point for learning about epilepsy, what resources are available, how to make the most of doctors' visits, and how to take control of seizures, seizure first aid & safety, & find self-management tools. Learn more here: https://www.epilepsy.com/living-epilepsy/toolbox/new-seizures-and-epilepsyYou all may want to consider keeping a journal or diary. My Seizure Diary: https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diaryis a great tool for not only tracking seizures, but recording his medical history, setting reminders, managing medications,side effects, behaviors, symptoms and triggers, which can be shared with his healthcare team. For additional information about Tegretol and seizure medication side effects, visit: https://www.epilepsy.com/medications/carbamazepine It’s common for those who are in caretaker role to feel overwhelmed. It’s important to remember that you are not alone, and it is just as important to make sure you’re taking care of yourself as well.https://www.epilepsy.com/living-epilepsy/parents-and-caregivers It can be helpful to connect with other parents who may have similar experiences, to ask questions, find &give support to each other, by visiting: https://www.epilepsy.com/living-epilepsy/parents-and-caregivers/parents-helping-parents Or contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources. 1-800-332-1000, contactus@efa.org. epilepsy.com/helpline