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Toddler girl with epilepsy stops breathing during tonic seizures
Sat, 12/14/2019 - 07:30Topic: Parents & Caregivers
My 2 year old daughter has epilepsy. Her seizures are still not 100% uncontrolled, so we still see breakthroughs. Every few months, she has a tonic seizure that will cause her to stop breathing for almost 2 minutes. We have reported these to her neurologist and they increase her keppra each time. She is newly diagnosed, so we are just getting started on getting her seizures under control. Has anyone experienced these seizures causing them/their child to stop breathing for an extended period of time?
Hi, Thank you for posting, we
Submitted by Anonymous on Mon, 2019-12-16 - 09:09
Hi, Thank you for posting, we understand this must be very scary and upsetting for you all to experience. It’s important that you all continue follow-up with your daughter’s healthcare team to express your concerns and if she experiences any changes in side effects, seizure types, frequency, behaviors and symptoms, to determine what individual treatment is best for her. If you have not already, you may want to consider having her see an epileptologist (epilepsy specialist). For assistance finding a specialist near you, please visit: https://www.epilepsy.com/living-epilepsy/find-epilepsy-specialist Seizures can take on many different forms and affect different people in different ways. Learn more about tonic-clonic seizures,things to expect, here https://www.epilepsy.com/learn/types-seizures/tonic-clonic-seizuresAdditionally, there are plenty of things you all can do to help to manage her epilepsy &safety: https://www.epilepsy.com/learn/seizure-first-aid-and-safety/staying-safeLearn seizure first aid: https://www.epilepsy.com/learn/seizure-first-aid-and-safetyMake a seizure response or action plan to review with her doctor’s, on what to do if your child has a seizure and howto keep her safe: https://www.epilepsy.com/living-epilepsy/toolbox/seizure-formsUse a journal or diary, to track her seizures, record medical history, manage medications, side effects, moods, triggers, or other therapies https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary Review our seizure alert device factsheet with her doctor, to see if a seizure alert device is an option for her: https://www.epilepsy.com/sites/core/files/atoms/files/DAS100_Seizure_Alert_Devices_09-2018_FINAL2.pdfAdditionally, you may always contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources. 1-800-332-1000, or contactus@efa.org. epilepsy.com/helpline