Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Parents & Caregivers

12 yr old son with BRE and very scared

01/2007 | 11 Comments

My 12 yr old son was diagnosed with BRE 3 1/2 years ago. His EEG came out normal, but his symptons were classic for BRE. He had infrequent and mild...
New to the site-new to seizures

01/2007 | 4 Comments

I am being impatient, I know, but somebody please read my post in the new to epilepsy section. I didn't think I should put the whole thing in here as...
3 1/2 yr old with frontal lobe epilepsy

01/2007 | 6 Comments

Our 3-and-a-half-year-old daughter Anna was diagnosed with frontal lobe epilepsy in November. She started having seizures when she was a baby (we now...
Discouraged

01/2007 | 1 Comments

My 18 year old daughter was put on an experimental trial of natural progesterone because her seizures frequently followed her menstral cycle. She has...
Type of Seizure and affects on education

01/2007 | 6 Comments

I am new here. I have 2 daughters each diagnosed with a seizure disorder. My 8 year old was diagnosed when she was 2 1/2. She did have speech and...
son using depokate

01/2007 | 2 Comments

10 yr old 1000 depokate a day. No sz for a year. has has some problems in school, but been working those out as they come along. The biggest problem...
3 month old with seizures

01/2007 | 20 Comments

I am new to the website and have really learned a lot in just a few days. My daughter is 3 months old and was recently diagnoised with a seizure...
Tooth Brush Epilepsy

01/2007 | 3 Comments

Just found out today during round the clock video EEG of my 15 year old daughter that there is indeed such a thingas tooth brush epilepsy. We always...
Status Epilepticus

01/2007 | 4 Comments

Hello all, This is my first blog. My 19 year old son had his first seizure on December 2, 2006. He was at his house near Boston where he attends...
Help

01/2007 | 2 Comments

My 17 year old son has had epilepsy for 12 yrs and despite some early problems has been seizure free for about ten years on dilantin. Life was great...
13 year olds sleep eeg

01/2007 | 1 Comments

Hi I just took my 13 year old in for his sleep eeg... he has had a previous eeg that showed adnormal spikes...so our family dr. ordered a sleep eeg...
16 month old ripping out her hair.

01/2007 | 2 Comments

I need help, ever since my daughter was diagnosed with epilepsy (complex partial seizures) and started on topamax she has been ripping her hair out in...
Starting the new year with knowlege

01/2007 | 0 Comments

I would like to invite everyone to start the new year off with knowledge and power. There is a new non-profit out there whose mission is to speak up...
My son with BRE

01/2007 | 11 Comments

Hi, my 7 year old son has BRE. He has had 3 seizures. One a month ago and then two more within two days of eachother last week. His first two were...

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.

Subscribe