Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Share Your Story

We invite you to share your personal #DareTo Go the Distance story. Use this forum to talk about how you are managing your seizures, finding your best possible health care, and improving your quality of life.

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Epilepsy and Marriage

10/2018 | 2 Comments

Hello Everyone, I am Divyesh Jain. I live in India. I am having epilepsy since the age of 12. At present, my age is 34. I need guidance on how should...
uncontrolled seizures

10/2018 | 7 Comments

my husband was on dilantin 300mg twice a day so (600mg total daily) and was well controlled on dilantin no seizure activity for like 6 years. With the...
Introducing my self and story!

10/2018 | 0 Comments

Hello all! My name is Cole, I’m from South Dakota, and have been living with epilepsy for just a few years now. I have reached a therapeutic level...
Musicogenic seizures

09/2018 | 1 Comments

I have musicogenic seizures, a rare type of reflex epilepsy. Since being diagnosed almost 15 years ago in my mid twenties, I’ve met many people with...
Overcoming Epilepsy With Motivation

09/2018 | 4 Comments

One late evening in November 1979, I was thirteen years old. I was babysitting a small baby. Back then I was a babysitter on weekends to earn extra...
Seizures

09/2018 | 1 Comments

Seizures can be very tiring to both the patient and the ones surrounding them. it's not the tiresome taking care of them. But sometimes, it tires us...
Not disabled

09/2018 | 8 Comments

I'm 48 years old and have worked a number of jobs all my life until the seizures had torn up my body to the point of no return. I finally applied for...
Share Your Story

09/2018 | 1 Comments

Hey, I am 17 and I am a teen with epilepsy living in New Jersey and I'm creating a video about the awareness of teens with epilepsy (daily life, extra...
Hello

09/2018 | 4 Comments

Hello! My name is Amy. I'm 22 years old, and have never been technologically-inclined. My baby sister (though being 16 makes her "not a baby")...
Unsure

09/2018 | 2 Comments

I have been having what I call episodes for the past few years. Last year I had my first major one. I was sitting in my car waiting for my husband and...
ADULT EPILEPTIC LOSES JOB AND SOON HOME

09/2018 | 2 Comments

My friend and co-worker who is a long-time epileptic lost her job with the federal government over the one-time use of cannabis to assist with...
Am I having some kind of seizures?

09/2018 | 1 Comments

Hi there, I've just joined this site and thought I could use some help. Basically when I was 12 i had my first seizure. I had another one a week later...
Seeking Similarities

09/2018 | 0 Comments

Hello Everyone! I'm sure my story is similar to many others and that is what I'm hoping. Here it is.. it may be a bit of a novel... apologies. Had my...
Still don’t feel normal

09/2018 | 3 Comments

I’m new here and I wasn’t sure where to ask questions so I’m trying this. I had my first grand mal seizure at 13 years old. I always bounced back...
Crazy Ride

08/2018 | 0 Comments

This has taken me forever to write. Mainly because it still scares me to admit what happened, and what still may happen to me. I was in college when...

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