Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Share Your Story

We invite you to share your personal #DareTo Go the Distance story. Use this forum to talk about how you are managing your seizures, finding your best possible health care, and improving your quality of life.

Learn more about #DareTo Go the Distance
We are here to help!
Nightmare Trip

11/2017 | 1 Comments

Hey so I have been diagnosed with gran mild seizures for over a year now. My most recent one was perhaps the scariest. Me and my friends decided to...
Absence seizures??

11/2017 | 6 Comments

My step daughter is eight years old and had her first seizure around a year ago. We witnessed her first seizure Dr says a prolonged absence but I’m...
Nocturnal Seizures vs Nightmare

11/2017 | 2 Comments

I haven't been diagnosed yet but i will begin my neurology referral soon. Back story- I have been a VERY lucid dreamer since i was about 15 (i'm now...
Making Strides in my life

11/2017 | 2 Comments

I am 25 years old now, I have had epilepsy since I was 8 years old. I slipped and fell on black ice, and hit my head on the concrete. That was only...
What does a petit mal seizure feel like?

11/2017 | 6 Comments

Can anyone describe what an absence seizure feels like? I've been wondering if they are something I experience. I'm 20 now but my entire life I would...
Seizure after smoking weed

11/2017 | 3 Comments

I was at my friends house, and i haven't smoked at all that day. We went on a walk to a trail and i only had half a bowl of weed, which is a normal...
School, Seizures, and Sleep

11/2017 | 2 Comments

So I have JME and have seizures when I'm sleeping. I don't wake up after them, but in the morning I will have realized that I had a seizure because I...
School, Seizures, and Sleep

11/2017 | 0 Comments

So I have JME and have seizures when I'm sleeping. I don't wake up after them, but in the morning I will have realized that I had a seizure because I...
Epilepsy

11/2017 | 1 Comments

Nannaofjoy1 What to do about nighttime seizures & if it’s always related to bed wetting in adults have an 18-year-old daughter and she had her first...
Seizures based on genetics

10/2017 | 4 Comments

Would anyone have any experience with seizures caused by genetics? I inherited my seizures from my father and he has been dealing with his seizures...
Hi! (Introduction) **pretty long, sorry**

10/2017 | 1 Comments

My name’s Emily and I’m 17. As a small child I suffered from Tonic Clonic seizures. Having those types of seizures at such a young age was tough, I...
Post TBI seizures???

10/2017 | 5 Comments

Sorry in advance about the length of this post...But I need help. I was in a car accident and had a TBI. I was diagnosed with having seizures shortly...
"Is it Possible?"

10/2017 | 3 Comments

I am here to tell a story, this is my personal, vulerable, and honest endeavour with my radical teacher epilepsy. But to also propose a question, "Is...
M.E/C.F.S and seizures

10/2017 | 13 Comments

To help with information and experience of the condition and how to manage a life so we still feel part of it :-)
would this be consider disicramention

10/2017 | 1 Comments

Been going to the same Pub and I don't drink any achocol beverages at all always order me a sweet tea I have sudo seizures I had one the night of...
Lost our son to SUDEP

10/2017 | 12 Comments

Our 28yr old son passed away on Oct 3 2017. Cause of death listed as cardiac arrest due to seizure. Never Never in a million years did we think his...
My daughter has PS

10/2017 | 3 Comments

Hello! I'm writing from Romania so please excuse my writing mistakes. My daughter was diagnosed with PS when she was 2 years and 10 months. Now she is...

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.

Subscribe