Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Share Your Story

We invite you to share your personal #DareTo Go the Distance story. Use this forum to talk about how you are managing your seizures, finding your best possible health care, and improving your quality of life.

Status elipiticus

06/2017 | 1 Comments

Hi, ive recently been diaagnosed with epilepsy, my first bout being life threatening se. I was driving on the thruway, woke up a week later strapped...
first time incident

05/2017 | 5 Comments

Hello, I can't believe how this is such an epidemic, until this hits home and it has our family traumatized right now, but I have to say we feel...
Left temporal lobe epilepsy

05/2017 | 6 Comments

I need help , My son is 11 years old now, he had febrile convulsions when he was 3 years old then another time when he was 6 years, the last time was...
Part of my story

05/2017 | 3 Comments

So it will be 5 years in August that I found out I had seizures. I was 6 months pregnant with my second daughter when I had two seizures within 3...
My epilepsy story

01/2017 | 3 Comments

Hello, I want to share my story on the epilepsy I'm currently suffering from. I am your average 26 years old male. First of all let me start with the...
Driving to a Brighter Future

01/2017 | 0 Comments

This is an essay that I wrote for an application to The University of Chicago telling my story of a life with diabetes and ultimately my battle with...
Poem I wrote about my epilepsy

12/2016 | 1 Comments

The time machine I feel is always lurking around every corner Even though it’s followed me for so long it still feels like a foreigner When I was...
Suicidal thoughts/Topirimate

12/2016 | 1 Comments

Topirimate/Suicidal thoughts Topic: Fundraising and Awareness I was put on Topirimate, as I have a neck condition called bilateral cervical stenosis...
Eric's Epilepsy

11/2016 | 1 Comments

I am a 35 year old male with epilepsy. I had my first seizure at age 2 or 3. A seizure, which forced me to be transported to Good Samaritan Hospital...
As Strong As I Can Be

08/2016 | 2 Comments

Hey everyone! My name is Savanna and I'm 20 years old. I was diagnosed with petit mal seizures when I was 15 years old and it's been a long journey...
Enlightened by fleas

07/2016 | 0 Comments

Are u ready for this? I had 1st sez 22years ago they did all the tests, nothing found but diagnosed with temp'lobe ep'. Tried all the med's but no...
#DareTo Go The Distance

07/2016 | 0 Comments

Hi Everybody! My name is Hayley, I'm 22 and I am diagnosed with temporal lobe epilepsy. In 2012, I had made myself home at my first few weeks at...
SIX SEIZURES A DAY

06/2016 | 0 Comments

Hello everyone, I wasn't born with seizures, mine didn't start gradually like most, there were no major warnings like most, they just came like a...
We're the lucky ones

06/2016 | 0 Comments

My name is Byron and I'm new to this forum, I'm 22 now and had epilepsy since roughly 14 years old. After being hospitalized 9 times, countless...
Why I never give up

06/2016 | 0 Comments

I have a very refractory seizure disorder which I've had since I was 25, I'm 34 now. I was having an average of a seizure every four to five weeks. My...

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.