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Fear of getting seizure in public
Thu, 02/26/2015 - 12:53i'm 16 years old girl and i've been on Lamictal for about 17 months now, ever since i was 13 i suffer from social anxiety and my confidence level is very low and i remember how i got my first ever seizure and it was in public. when i woke up random strangers were surrounding me and i was so scared. Whatsoever that's not the point, honestly my seizure it's not severe and the doctor doesn't have to rise up my dose because i'm only taking 15-25mg per day when everyone else is taking like 200mg? i don't know but i feel like i'm sensitive to it because right after i started my lamictal, i started gaining a lot of weight and i started getting rashed and all those kind of things all over my body, my back, my face, chest and every where even my scalps fall off and i remember going to the doctor but the doctor just said that it's normal. I guess for a teenager that's growing up with a social anxiety and a very low level of confidence, it is hard to go out in public without having the fear of getting seizure especially when i go to school.I avoid going to school or joining anything or even go out with my friends, since i got it i have only gotten out with my friends about 5 times and it was 2 years ago. i remember how i would hide myself in school because sometimes i would feel like i'm going to get seizure because everytime i get it i will lose my sight for a while and then i would just fall and get it. It's depressing to see myself this way, i'm so much better now i used to cry everynight on how i just want to be normal, i don't want to live with this. But it's just that i am so upset at the fact that i can't do a lot of things that normal teenagers can do, swimming and biking was my hobby but i had never done any of that since my seizure and people would treat me like i'm some special kid and nicely and all it's I don't know it stresses the hell out of me. I just want to feel normal at least
WelcomeI know what it is like
Submitted by just_joe on Thu, 2015-02-26 - 15:17
WelcomeI know what it is like having seizures in public. I did not come to and the people would be arround me. I had my seizures and would be in a convulsion and see them. The seizures I had would look like a grand mal seizure. Only diference was I did not lose conciousness. I saw heard and understood what was happening arround me. I heard friends say they didn't want to be arround me any more. I heard the person telling someone to get the nurse. I knew the person that put their jacket under my head. So we had different seizures. But both were in the public. I didn't let my epilepsy control what I was doing. Sure I might have a seizure now and then but I looked at it in a different way. The seizure is a space in time. My life is a longer period of time. Why stop the long period of time to keep the little space in time take over? I was never the best looking or the smartest or the best athalete but most people aren't. I wasn't rich but I was rich with friends and knowledge. The knowledge I am talking about is not taken from a book. It is common sense. Use common sense and it will help you thru many obsticals you will have comming thru your life.Basically what I am saying is go out with your friends. They will help you get places and be with you. If you do have a seizure they should know what to do to help you. I told my friends what to do and they kept people away or told them I was going to be fine. You see I have more then 1 type of seizure and they knew what to do if I had any of them. I went to dances. football games and aything I wanted to see. Dates were a little different. Double dating still happens. Going out with others helps you deal with what other people might think. Let them know that yo may have a seizure now and then but you are just like other people that have a handicap. Inform them that they see people daily that have handicaps. People wearing glasses. hearing aids. diabetiesw and other handicaps. Inform them that your handicap can not be seen but it is there. Deal with your seizures as you would other things. Do you let having a seizure stop you from reading because you might drop the book when you have a seizure? Do you stop playing a game? What about talking to your friends?? You might have a seizure. However you might not have one. Seizures are blips in time. I'll take a life time of joys and being with friends over that little blip in time.You control what your life will be like!!!! Don't let your epilepsy and seizures control your life........................ I hopethis helps... But just know you are no aloneJoe please come back and let us know how things are going