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I Need A Solution
Tue, 05/24/2016 - 00:33Topic: Teen Zone
Hi everyone! I'm 17 and started having seizures at 12. So, I'm currently taking lamotrigine (50 mg 2x a day), Depakote (750 mg a day), and Keppra (1500 mg a day) for JME. I've been experiencing what I think is drug-induced tremors? Anyways, these tremors are supposedly brought on by the Depakote, which is why I'm now on Keppra as well. Over the last year ish, they've gotten progressively worse. I really, really want to be in my school's marching band next year, but I can't do it if I'm afraid that my legs might just start shaking in the middle of a show or something. Does anyone know any sort of therapies/ special exercises/type of medicine etc that could help? These tremors have made it hard to write, draw, run, etc. I just so badly want to be able to have that thrill that marching band used to give me up until I couldn't do it anymore. I'm sick of 'not being able'. Please help.
Comments
I know exactly what you're
Submitted by lauren_allen on Tue, 2016-06-07 - 14:36
I know exactly what you're going through. Before I was diagnosed I used to have them every morning. It made it hard to even eat cereal without a twitch and the spool or bowl flying everywhere. I have a higher dosage of Lamotrigine which is 200mg but I also have a medication to help stop them which is Lorazepam. It's a sedative that can treat a seizure when or before it's happening to stop it. It also can help if you have anxiety so it basically calms your nervous system. It really helps and has made my life so much easier. You should really talk to your Neurologist about it!I'm happy to know I'm not the only one and that through this we can help each other! Best wishes xx.
Hey I'm new to this Epilepsy
Submitted by Badger_59515d76dfe26 on Fri, 2017-07-07 - 15:02
Hey I'm new to this Epilepsy Foundation chat thing. I want to say I have abdominal epilepsy and I have been in my high school's marching band or the past 3 years. I am a senior now and I march quads (The heaviest drums on the field). My epilepsy will always be a rough obstacle to get around but it has never stopped me from doing what I love; marching band. Consider getting a Vagus Nerve Stimulator implant. I have one in my chest right now. Ive had it for a little over a year and it has helped me tremendously. My seizures have gone down so much. Just before I got it, I used to have seizures several times a week and that really affected my marching abilities. The VNS literally changed my life around and you should consider it. :)
First of all, try find a
Submitted by brand62433 on Tue, 2016-05-24 - 04:47
First of all, try find a social group or a grown-up that you can talk to. Sometimes they would you ask you questions, but try to answer them like as if you are doing an interview. Most people do really know what to do in a situation where an episode can occur, but if you are really that concerned, talk with your Neurologist or a specialist about your situation. I had a lot of interests, like driving and being able to live on my own, but with the condition that I am in, my family gets all worked up like nothing. Just start talking to people and you will do just fine.