Building a Supportive Community on My Journey

Neha is sharing her story about how building a support system helped on her epilepsy journey

By Neha Suri

Person with Epilepsy

Tuesday, December 5, 2023

In 2020, I experienced a terrifying seizure during the height of the COVID-19 pandemic. Unfortunately, I had another one in 2023 that was accompanied by a paralysis episode. These incidents have shaken my confidence, and I often dwell on the past. Managing epilepsy, especially with the added complication of paralysis, has been an uphill battle. I have been working closely with my healthcare team, trying to find the right treatments and medications to manage my condition effectively.

During these incredibly tough times, my parents have been my unwavering support, holding me up when I felt I could not stand. The challenges of managing epilepsy, compounded by the weight gain and memory loss caused by some of my medications, have been overwhelming.  

Despite the difficulties, I have found solace in connecting with others who have faced similar challenges. Online support groups and communities dedicated to epilepsy have reminded me that I'm not alone in this struggle and offer a comforting sense of belonging. My employer, Accenture, has been remarkably understanding and supportive, standing by me just like my parents and providing the care and understanding I needed.  
I'm grateful for my incredible support system, including my family, understanding employer, and the broader epilepsy community. I am determined to maintain a positive outlook, prioritizing my health and well-being.

Though I have lost confidence, I recognize my strength in seeking help and connecting with others. I know it is okay to have moments of doubt, but I will not let them define me. I am resilient and will rebuild my confidence with time and support. 

Reviewed By: Sara Wyen

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.