Each Journey Is Unique
Your epilepsy story is powerful and can give people hope, empowerment, and safety. Join our community and share your story to talk about epilepsy, seizure safety, and the need to find cures. Make a difference and take action.
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Monday, October 30, 2023
Epilepsy Does Not Have Me
My epilepsy journey began at the age of 16 after I experienced two seizures in my sleep. I remember waking up with everyone around me and not knowing...
Wednesday, October 25, 2023
Succeeding Despite Epilepsy
I had my first seizure when I was 14, but no one knew. I was alone. After I woke up, I told my parents I fell out of a chair, which I did. Weeks later...
Thursday, October 19, 2023
Living in the Moment With Epilepsy
My name is Campbell. I am 18, and I suffer from tonic-clonic seizures. My first seizure was a complete surprise, and so was the epilepsy diagnosis...
How I Found Hope on My Epilepsy Journey
I was three when I first had a tonic-clonic seizure. I can't imagine the thoughts that went through my mother's head. She is the definition of a true...
Thursday, September 21, 2023
You Are Not Alone on Your Journey
A brain hemorrhage at six weeks of age caused me to have seizures as a child. I was on an anti-seizure medication until I hit adolescence. When I was...
Wednesday, September 13, 2023
Making Connections That Count
I started taking mixed martial arts (MMA) classes at the end of May in 2023, and during class, my coach noticed I was having "staring spells" during...
Thursday, September 07, 2023
Not All Seizures Are the Same
I was born a normal baby boy in Maracaibo, Venezuela, in 1977. Things were simple, and I had no medical problems for the first few years. Then...
Tuesday, August 29, 2023
How I Became A Voice for the Epilepsy Community
I was diagnosed with epilepsy in 2008 when I was nine. Having epilepsy was extremely rough in the beginning. All of the seizures I had growing up were...
Thursday, August 24, 2023
Sharing My Epilepsy Journey to Inspire Others
I grew up with epilepsy, having seizures weekly and sometimes more than one seizure in a day. Anti-seizure medication didn't control my seizures. I...
Thursday, August 17, 2023
How I Live With Epilepsy and Without Limitations
On a beautiful summer day at the age of 23, I visited my first neurologist. His people skills could have been better, but he was my ticket to figuring...