Each Journey Is Unique
Your epilepsy story is powerful and can give people hope, empowerment, and safety. Join our community and share your story to talk about epilepsy, seizure safety, and the need to find cures. Make a difference and take action.
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![Read Kristy's epilepsy journey of hope](/sites/default/files/styles/stories_285x200/public/2024-02/KristyYoungbloodeJourneyBanner_1200x630.jpg?itok=oWy1zTdm)
![](/sites/default/files/2022-03/Support-Group-Meeting.png)
Friday, February 23, 2024
Sharing My Journey of Hope
I had my first seizure in 2022. I was eight months pregnant. I had never had any symptoms before, and I had no warning signs. I was teaching in my 2nd...
![Read Joe's story about finding epilepsy treatment that works for him](/sites/default/files/styles/stories_285x200/public/2024-02/JoeOrnelaseJourneyBanner_1200x630.jpg?itok=kK_YxUAL)
![](/sites/default/files/2022-03/Support-Group-Meeting.png)
Tuesday, February 20, 2024
Finding What Works for Me
In 1996, I was diagnosed with epilepsy after having a tonic-clonic seizure early one morning. I remember coughing as I regained consciousness. I...
![Andrew is sharing his journey about getting a correct diagnosis for seizures and a cause for his epilepsy](/sites/default/files/styles/stories_285x200/public/2024-01/AndrewFedoreJourneyWebBanner_1200x630.jpg?itok=kp6KvufH)
![](/sites/default/files/2022-03/Support-Group-Meeting.png)
Tuesday, February 13, 2024
I Won't Hide Anymore
I've experienced the tight grip of epilepsy my entire adult life. In 2013, I needed answers as to why I was experiencing dizzy spells, so I went to...
![Read Caitlyn's story about how her epilepsy diagnosis motivated her to make a difference](/sites/default/files/styles/stories_285x200/public/2024-02/CaitlynJeffreyeJourneyBanner_1200x630.jpg?itok=--e6yZjr)
![](/sites/default/files/2022-03/Support-Group-Meeting.png)
Wednesday, February 07, 2024
Motivated to Make A Difference
I was diagnosed with benign rolandic epilepsy (BRE) about ten years ago when I had two documented tonic-clonic seizures. Not only was I diagnosed with...
![Read about how Sophia is spreading awareness about epilepsy and seizures](/sites/default/files/styles/stories_285x200/public/2024-01/SophiaCortezeJourneyWebBanner_1200x630.jpg?itok=d077B7OY)
![](/sites/default/files/2022-03/Support-Group-Meeting.png)
Wednesday, January 24, 2024
Overcoming Challenges To Make a Difference
My name is Sophia, and I am 20 years old. I have lived with epilepsy for 13 years, since I was diagnosed at 7 years old. My epilepsy is caused by a...
![Read Colby's eJourney about how support helped him overcome the challenges of living with epilepsy](/sites/default/files/styles/stories_285x200/public/2024-01/ColbyAguayoeJourneyBanner_1200x630.jpg?itok=tQmWSAfW)
![](/sites/default/files/2022-03/Support-Group-Meeting.png)
Monday, January 22, 2024
Finding My Strength in a Supportive Community
Epilepsy caused a significant turning point in my life. It all started when I was 13 years old. I had my very first seizure at almost midnight on my...
![Manny is sharing his family's story to raise awareness about epilepsy](/sites/default/files/styles/stories_285x200/public/2023-10/eJourneyBannerMannyA1200x630.jpg?itok=vWuOzRQC)
![](/sites/default/files/2022-03/Support-Group-Meeting.png)
Thursday, January 04, 2024
Compartiendo Nuestra Historia
Me diagnosticaron con epilepsia ya de adulto. Mi esposa y yo regresábamos de las Vegas y, aparentemente, tuve una crisis epiléptica en la carretera...
![Liliana is sharing her story about how her epilepsy diagnosis provided clarity](/sites/default/files/styles/stories_285x200/public/2023-12/Liliana%20AmbrizeJourneyWebBanner_1200x630.jpg?itok=UiA9wndn)
![](/sites/default/files/2022-03/Support-Group-Meeting.png)
Wednesday, January 03, 2024
Finding Clarity Through My Epilepsy Diagnosis
I was having seizures for approximately 10 years before I was diagnosed with epilepsy. It all began when I was in third grade. My mom noticed that I...
![Read about Matthew's journey with Dravet Syndrome](/sites/default/files/styles/stories_285x200/public/2023-12/Yvette%20Metzger%28Matthew%29eJourneyWebBanner_1200x630.jpg?itok=nUfw6Ag-)
![](/sites/default/files/2022-03/Support-Group-Meeting.png)
Tuesday, December 19, 2023
Matthew's Journey With Dravet Syndrome
Matthew was diagnosed with epilepsy at 7 months old. We were convinced it was a one-time seizure. His siblings witnessed it and said he looked like a...
![Read Evelyn's story about how she manages her life with epilepsy and seizures](/sites/default/files/styles/stories_285x200/public/2023-12/EvelynOdangoeJourneyWebBanner_1200x630.jpg?itok=NtjxQSef)
![](/sites/default/files/2022-03/Support-Group-Meeting.png)
Wednesday, December 13, 2023
Accepting the "New" Me
I was diagnosed with focal onset and generalized epilepsy with uncontrolled seizures in July of 2023 after having a seizure at work. The subsequent...