BLOODY RED BULL,......ENGLAND and other counties need a WAKE UP CALL!!!!

well were do i start.... i'm 17 , i have a form of autism called Aspergers Syndrome i'm also have A.D.H.D

(Attendtion Defict Disorder) and the list is never ending ......I'm from the uk and an i just got diagnosed with

epilepsy two months ago ... with simple partial , myoclonic's, complex partials and the odd Tonic-Clonic

seizure..... i have more simple and myoclonics more then anything...... so i'll start with..... well right, i'm lictrally

addicted to the stuff, and i can go for periods of not drinking it and then drink like between 1 to 4 cans or more

a night.... i can personally say.... from 3 to 4 seizures a day,

to over 60 seizures in one day after drinking 4 cans of red bull is not good... i nearly ended up comatized by

the seizures because of the red bull.... i would drink it at night and stay up for 2 or 3 days at a time..... forget

my med's and take them late and not eat aswell. and if i did sleep i would have seizures that i normally would

not have, like clonic seizures and absence seizures and all the rest of it... i would have them plus all my usual

seizures; and they would be so volient aswell... i found some of them i would be in "full convulsion mode" and i

would be awake with it... i would hear voices and high piched sounds and then followed by flashes of

"lighting" just before i had these violent episodes.... one night i had 24+ plus seziures with in the space of

half an hour..... and then i thought "fuck this i'm too scared to go back to sleep i'll stay up and then go straight

from bed to college!!" soo an hour later i tried to fall asleep,

again and then i had another 15+ in the space of 10 mins.... i didn't want to go to hospital because i knew i

would never get out of the place... they like to send you home seizure free for 3/4 day before they will let you

out... and No way is that possible for me ....ITS A MEDICAL JAIL HOUSE HONESTLY!!! this was only a few

weeks back.... i got a bollocking of everyone inculding the administrator for this site (epi_help aka Patty). and i

didn't take a blind bit of notice..... soooo.... 3 days later and my seizures were gradually going down... i

needed to have a can of red bull i was getting really anniod and pissed off that the shop was shut its was like

at 11.00 at night .... so when mum was in bed at 1.00 am i walked a mile and half just for a can of red bull..... i

ended up getting 5/6 cans of the stuff .... and yes again i was in hospital for the 15th time that month with

nearly a 100 sezures in one day.... i didn't tell anybody about that part because i knew what would happen!

all the emergancy doctors and staff know me now.....and they ended up getting the medical chart and wack it

round my head cos i'm a bit nieve about the whole epilespy thing and being such an idiot, i only got diagniosed

two months ago.... and i'm still a bit in denial about it....

thinking i can get away with drinking alcohol and smoking a joint or two with my friends ... i know weed is

ment to calm down seizures but in my case it doesn't.... i suffer with partial status.... i which is not good at

all.... but still me being me and a 17 year old teenager with autism , its doesn't sink in as it should... yes i'm a full time

college student and i work aswell ... long hours at college to try and make up for the time and weeks i have

missed due to being ill and in hospital for weeks on end and its just too much... so what do i do?.... turn to the

stuff that gave me and my writing hands wings!!!! and i thing i should go and chain my self to the class room

table and then straight on to my bed so i can't go near the shops.... please some one put me under HOUSE

ARREST! LOL... I have learnt my lesson now... no more red bull... coke... or any caffeine for me!!!

. love soph xxx

SO PLEASE SHARE UR EXPIERENCES AND LETS START A PARTITION AND LET HELP BAN ENERGY DRINKS.... OR AT

LEST GET A HEALTH WARNING ON THE CANS/BOTTLES FOR PEOPLE WITH EPILEPSY..... I HAVE RECENTLY FOUND

OUT THAT MANY PEOPLE HAVE DIED FROM DRINKING THE STUFF!!!! ......SOME OF THEM DIDN'T EVEN KNOW THEY HAD EPILEPSY!!!....